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The Rare Diseases Foundation supports the recommendations of Solve-RD!
The project "Solve-RD - solving the unsolved rare diseases", financed by the European Commission and with the objective of facilitating the diagnosis of rare diseases,...
Co-design workshops in e-health: the 2023 winners
For the 2023 edition, 6 "E-Health & Rare Diseases" projects have benefited from the co-design workshops! 57 project leaders...
Data challenge D-IA-GNO-DENT
The D-IA-GNO-DENT consortium launches its DATA CHALLENGE. This consortium, coordinated by Pr Bloch-Zupan, is composed of the Centre de référence des...
Annual Scientific Symposium
The traditional Annual Scientific Symposium of the Rare Diseases Foundation will be held on Tuesday, June 27, 2023 at the Collège de France, Paris 5ème....
RARE 2023 Meetings
The dates of the next RARE meetings are set! They will take place on October 3 & 4, 2023 at the International Conference Center of...
The Grand Est Scientific Symposium
On February 26th, on the occasion of the 16th International Rare Diseases Day, the Grand-Est scientific symposium was held...
Call for Projects "Human and Social Sciences & Rare Diseases" 2023
The Rare Diseases Foundation launched its eleventh call for projects "Human and Social Sciences & Rare Diseases" on February 28, 2023. It aims at...
Call for projects "Innovative therapeutic proof of concept in rare diseases
For the second year, the Rare Diseases Foundation was pleased to be able to launch, jointly with the AFM-Telethon (www.afm-telethon.fr), the...
New MOOC "Introduction to translational research for rare diseases
In the context of the European Joint Programme on Rare Diseases (EJP RD), the Foundation for Rare Diseases...
Rare Diseases & Pain" Research Award
In addition to the well-identified difficulties associated with rare diseases, a number of rare diseases are responsible for pain, inherent to...
Alnylam 2023 Prize - "RNA interference & rare diseases
Alnylam Pharmaceuticals is once again partnering with the Rare Diseases Foundation to award a €20,000 grant to a project in the field of...
Call for RHU COSY projects - "Human and Social Sciences & Hypergrowth Syndromes
As part of its participation in the Cure Overgrowth Syndromes University Hospital Network (RHU COSY - www.rhu-cosy.com), the Fondation Maladies...