ABOUT US
The Foundation For Rare Diseases
The genesis
A foundation that brings together the players in research and care
A flagship measure of the "research" axis of the 2nd National Plan for Rare Diseases 2011-14, the Foundation For Rare Diseases was created on February 7, 2012 by decree of the Ministry of Higher Education and Research.
The Foundation For Rare Diseases is a scientific cooperation foundation, a non-profit legal entity under private law. It is subject to the rules governing foundations recognized as being of public utility. It was born from the joint will of all the actors involved in the research and care of rare diseases, and more particularly its 5 founding members.
The Foundation is a real link between all the actors in the field of rare diseases.
A coordinator and accelerator of research on all rare diseases
The Foundation aims to promote research projects and scientific excellence as well as the sharing and dissemination of knowledge in the field of rare diseases. It pursues the following objectives in particular:
the coordination of national actors in research on rare diseases,
Accessibility to technology platforms and calls for projects,
the setting up and monitoring of a national database on rare diseases,
support for the implementation of clinical trials and the bringing together of the public research sector, diagnostic products and innovative therapies,
representing France in the implementation of European and international projects.