Events and communication actions

Our annual conference

The Foundation organizes an annual scientific symposium at the Collège de France in Paris in the spring. Through this event, it wishes to offer a day of exchange, debate and meetings to all those involved in rare diseases and to encourage the emergence of new research projects.

The program is built around presentations of the results of the Foundation's award-winning projects and the sharing of experiences. The presentation of numerous posters enriches the content of this day.

This free event brings together between 200 and 300 participants.

The plenary sessions are broadcast live on YouTube and will be accessible later on our YouTube channel


"Scientific Symposium of the Hauts de France


"Advancing research in rare diseases"


"Issues and challenges of research in rare diseases"


"Issues and challenges of research in rare diseases"

Our regional seminars

The Foundation, with its original structure, is composed of a team of professionals spread throughout the country.

This proximity to the heart of the inter-hospital-university regions offers privileged relations with all the players in the field.

Based on these contacts and links, the Foundation organizes regional symposiums to promote research with local partners.

February 24, 2022

Regional scientific symposium in Strasbourg

April 9, 2021

Inter-regional conference in Nantes

 February 28, 2020

Regional scientific symposium in Strasbourg

March 8, 2019

Scientific Day on Rare Diseases in Bordeaux

The congress of rare encounters

Since 2017, the Foundation has been carrying a major Congress in the field of rare diseases, the RARE Meetings.

This two-day event brings together the entire rare disease community: public decision-makers, patient representatives, health and research professionals, and manufacturers of drugs, medical devices and health technologies.

The objective of these meetings is to assess the state of research and care in this sector and to define new ambitions for the future in order to provide solutions for the management of these serious, chronic and disabling diseases.

The next edition will take place in the fall of 2023.

You can find more information on our dedicated website: www.rareparis.com

Our podcasts: TAmDeM

Academic Training on Drug Development

A podcast presented by the Foundation For Rare Diseases with the participation and support of Sanofi Genzyme.

This podcast offers, over the course of 5 episodes, to follow the development stages of a drug, from its creation in an academic laboratory to its marketing by an industrial company.

Our videos

The Foundation's mission is to inform and promote scientific research in all rare diseases.

We have therefore chosen to design short educational videos to help promote and understand scientific topics specific to our missions.