News and events

Our quarterly newsletters

News from the field

Download below our newsletters published regularly to inform you about the Foundation's actions and news in the field of rare diseases: calls for projects, congresses, information days, communication supports, etc.

You can also find news about the Foundation on

NEWSLETTER

Stay informed about the Foundation's projects

Stay informed about the Foundation's actions and news in the field of rare diseases: calls for projects, congresses, information days, communication tools, etc.