News and events
Our newsletters
News from the field
Download below our newsletters published regularly to inform you about the Foundation's actions and news in the field of rare diseases: calls for projects, congresses, information days, communication supports, etc.
You can also find news about the Foundation on
NEWSLETTER
Stay informed about the Foundation's projects
Stay informed about the Foundation's actions and news in the field of rare diseases: calls for projects, congresses, information days, communication tools, etc.