OUR ACTIONS
Funding of scientific projects
Our calls for projects (AAPs)
The Foundation For Rare Diseases supports excellent research to understand the causes and pathophysiological mechanisms of rare diseases, to develop new treatments, and to improve the lives of patients.
The Foundation has an active scientific policy and launches 4 to 6 calls for projects per year. It offers funding to winning research teams and access to innovative technologies such as new generation sequencing (exomes, whole genomes and new technologies of interest in this field), the development of animal models, and high-throughput screening of molecules with therapeutic potential. Expertise in these new technologies is provided by specialized technology platforms.
A registry of award-winning projects since 2012 is available
Current calls for projects
CALL FOR PARTNERSHIP PROJECTS
Call for projects "Social and therapeutic innovations to improve the quality of life of young rare disease patients and their families" with FE-IRCEM
The IRCEM Corporate Foundation and the Fondation Maladies Rares have joined forces to launch a new call for projects. The aim of this call for projects is to support projects that will have a concrete impact on improving the quality of life of children and adolescents suffering from rare diseases, and their family carers, by meeting the following criteria:
- aim to develop theautonomy of sickchildren and adolescents and promote their social inclusion;
- propose the study of a therapeutic, technological or organizational innovation;
- be an innovative project meeting an unmet need. The need to develop the innovation must be clearly demonstrated;
- explain and detail the concrete benefits for the target population, in particular by comparing the advantages of the proposed innovation with existing solutions.
All rare childhood and adolescent diseases are eligible for this call for projects.
Budget between €15,000 and €25,000
Duration 12 to 24 months maximum
Submission of bid documents before June 20, 2024, 5pm (Paris time).
If you have any questions, please contact: gaelle.dombu-smeets@fondation-maladiesrares.com
CALL FOR PARTNERSHIP PROJECTS
Call for ASL-HSP projects - "Research on hereditary spastic paraplegia".
In view of the specific nature of the field of rare diseases, the ASL-HSP Association and the Fondation Maladies Rares (FMR) have agreed to form a partnership to support and stimulate basic, translational and clinical research into hereditary spastic paraplegia. All biomedical disciplines are eligible for this call for projects.
Maximum budget: €25,000
Maximum duration: 24 months
Submission of bid documents before May 30, 2024, 5pm (Paris time).
If you have any questions, please contact: aap-asso@fondation-maladiesrares.com
CALL FOR PARTNERSHIP PROJECTS
Call for AFAF projects - "Research on Friedreich's ataxia".
Due to the specificities of the field of rare diseases, the AFAF Association and the Fondation Maladies Rares (FMR) have agreed on a partnership to support and stimulate fundamental, translational and clinical research on Friedreich's ataxia. All biomedical disciplines are eligible for this call for projects
Maximum budget: €50,000 to €100,000
Maximum duration: 24 months
Submission of bid documents before May 30, 2024, 5pm (Paris time).
If you have any questions, please contact: aap-asso@fondation-maladiesrares.com
OUR CALLS FOR PROJECTS
Call for projects "Human and Social Sciences & Rare Diseases " 2024
We are delighted to announce the launch of the "Human and Social Sciences & Rare Diseases" call for projects. This call for projects will provide support for pilot projects or project extensions that raise a research question, lasting between 6 and 18 months and with a maximum budget of €45,000.
All rare diseases of children and adults are concerned.
Research projects should address the individual, family and social consequences of rare diseases, and their specific impact on quality of life. Research will be conducted with a view toimproving the life course of patients and their families.
A joint approach to several rare diseases will be carefully considered. The choice of diseases must be justified. Studies focusing on a single disease should demonstrate a benefit in other situations.
To promote synergies between researchers in the Human and Social Sciences, experts in the medical management of rare diseases (Centres de Référence Maladies Rares, Centres de Compétences, Filières de Santé Maladies Rares), patient associations and experts in social and medico-social support, each project must involve at least one research team in the Human and Social Sciences, including the project's main sponsor, a medical team with expertise in rare diseases and a patient association.
This call for projects is open to all SHS disciplines, and cross-disciplinary projects are encouraged.
Application deadline: June 11, 2024, 12 noon (CET)
CALL FOR PARTNERSHIP PROJECTS
Call for projects with Vaincre La Mucoviscidose -
"Human and Social Sciences & Cystic Fibrosis
For the 6th year running, Vaincre La Mucoviscidose and the Fondation Maladies Rares are joining forces to offer a joint call for projects. The aim of this new call for projects is to promote synergies between SHS researchers and experts in the medical, social and medico-social care of cystic fibrosis patients. Projects submitted must formulate a research question, involving at least one SHS research team, a specialized medical team and a patient association.
Thanks to the partnership with Vaincre la Mucoviscidose, projects lasting up to 36 months and costing up to €150,000 can be supported. The Fondation Maladies Rares is in charge of implementing this call for projects.
This call for projects is open to all SHS disciplines.
Submission of bid documents before June 11, 2024, 12 noon (Paris time).
If you have any questions, please contact: shs-mr@fondation-maladiesrares.com
Partner platforms
For its Calls for Projects on high throughput sequencing, screening and the creation of animal models, the Foundation relies on partner platforms of expertise. We invite you to contact these platforms directly to set up your projects.
Rare Diseases and Pain Prize - APICIL Foundation
Since 2022, the APICIL Foundation has joined forces with the Foundation For Rare Diseases to reward an innovative project in the field of rare diseases and pain by offering a "Rare Diseases and Pain" prize of €15,000.
This prize, awarded to the project leader, enables a French research team to develop a research project on this theme that is so important for patients and is sometimes still too little studied.
Rare Diseases and Pain Award - ALNYLAM
Since 2020, Alnylam Pharmaceuticals has been committed to the Foundation For Rare Diseases to reward innovative projects using RNA interference technology in the field of rare diseases.
Each year, a €20,000 prize is awarded to an established researcher, scientific leader of a team attached to a French research organization, who has contributed through his or her research to major advances in the field of rare diseases.