OUR ACTIONS

Funding of scientific projects

Our calls for projects (AAPs)

The Foundation For Rare Diseases supports excellent research to understand the causes and pathophysiological mechanisms of rare diseases, to develop new treatments, and to improve the lives of patients.

The Foundation has an active scientific policy and launches 4 to 6 calls for projects per year. It offers funding to winning research teams and access to innovative technologies such as new generation sequencing (exomes, whole genomes and new technologies of interest in this field), the development of animal models, and high-throughput screening of molecules with therapeutic potential. Expertise in these new technologies is provided by specialized technology platforms.

A registry of award-winning projects since 2012 is available

Current calls for projects

Joint Call for Projects 2023 (7)

CALL FOR PARTNERSHIP PROJECTS

Call for projects Algodystrophy syndrome Algodystrophy France

"Complex regional pain syndrome -

Chronic neuropathic pain "

Given the specificity of the field of rare diseases, the Algodystrophie France association and the Fondation Maladies Rares (FFRD) have decided to join forces to support and stimulate research into complex regional pain syndrome CRPS (or algodystrophy) and/or chronic neuropathic pain. All biomedical, paramedical and humanities/social sciences disciplines are eligible for this call for projects.

Maximum budget: €15,000

Maximum duration: 24 months

Submission of bid documents before April 04, 2024, 5pm (Paris time).

If you have any questions, please contact: aap-asso@fondation-maladiesrares.com

Joint Call for Projects 2023 (6)

CALL FOR PARTNERSHIP PROJECTS

Call for projects Bardet-Biedl syndrome France - 

"Pigmentary retinopathy

Given the specificity of the field of rare diseases, theBardet-Biedl Association (BBS France) and the Fondation Maladies Rares have decided to join forces tosupport and stimulate biomedical research into retinopathy pigmentosa to improve Bardet-Biedl syndrome (BBS). All biomedical disciplines are eligible for this call for projects.

Maximum budget: €90,000

Maximum duration: 24 months

Submission of bid documents before April 04, 2024, 5pm (Paris time).

If you have any questions, please contact: aap-asso@fondation-maladiesrares.com

Awards & Scholarships (5)

RESEARCH PRIZE

Alnylam Pharmaceuticals 2024 Award - "RNA interference and rare diseases

Alnylam Pharmaceuticals renews its confidence in the Fondation Maladies Rares to organize a research prize for an innovative project using interfering RNA technology applied to rare diseases. The winner will receive a prize of 20 000 € to continue his or her research work.

The prize will be awarded to an innovative research project in the field of rare diseases, focusing on one of the following themes

  •  Translational research developing an RNA interference approach using an animal or cellular model.
  •   Innovative vectoring of interfering RNA targeting an organ or tissue.

The prize will be awarded to an established researcher, scientific leader of a team attached to a French research organization, whose research has contributed to major advances in the field of rare diseases.

Submission of bid documents before March 19, 2024, 5pm (Paris time).

If you have any questions, please contact: aap-bio@fondation-maladiesrares.com

FMR call for projects (2)

OUR CALLS FOR PROJECTS 

Call for projects "GenOmics 2024

The Fondation Maladies Rares is pleased to announce the launch of its "GenOmics" 2024 call for projects.

The aim of this AAP is to support hypothesis-driven research projects aimed at exploring the genetic and molecular basis of rare diseases using NGS approaches (WES, WGS, RNA-seq, small RNA-seq, ChIP-seq, Methyl-seq, etc.).

Support from the Fondation Maladies Rares will give project leaders access to innovative high-throughput sequencing technologies for the analysis of exomes, genomes, transcriptomes or epigenomes.

Application deadline: February 20, 2024, 5 pm (CET)

If you have any questions, please contact : aap.bio@fondation-maladiesrares.com
Awards & Scholarships (4)

RESEARCH GRANT

Research grant "Towards a concrete improvement in the quality of life of patients with autoimmune myasthenia".

The Fondation Maladies Rares and UCB have joined forces to offer a €30, 000 research grant to a humanities and social sciences (HSS) research project focused on findingconcrete, short-term ways ofimproving the life course of patients suffering from generalized autoimmune myasthenia gravis.

The grant will be awarded to a research project focusing on the individual, family and/or social consequences specifically linked to generalized autoimmune myasthenia gravis, in order to gain a better understanding of the impact of this disease, and in particular muscular fatigability, on quality of life at the level of the individual, couple or family, for example.

Application deadline: March 5, 2024, 5pm (CET)

If you have any questions, please contact: shs-mr@fondationmaladiesrares.com

RESEARCH PRIZE

Rare Diseases & Pain" research prize 2024

The APICIL Foundation has decided to join forces with the Fondation Maladies Rares to respond to the need to take better account of the pain associated with certain rare diseases, by providing €15,000 in support of a research project on "rare diseases and pain". rare diseases and pain" research project.

The prize will be awarded to an innovative research project in the biomedical sciences or in the human and social sciences in the field of rare diseases and pain. Particular attention will be paid to the fact that pain must be consubstantial with the rare disease studied.

The award will distinguish: 

  • or a researcher, scientific leader of a team contributing through his/her research to major advances in the field of rare diseases and pain, 
  • or a young researcher whose work is promising in the field of rare diseases and pain. 

The prize amounts to 15 000 €This amount will be used to continue research work on the theme.

Application deadline: February 27, 2024, 5pm (CET)

If you have any questions, please contact: christine.fetro@fondation-maladiesrares.com

CALL FOR E-HEALTH PROJECTS

4th edition of the "e-health and rare diseases co-design workshops". 

The digital revolution in healthcare is a tremendous opportunity for rare diseases. To support the emergence of e-health to improve the care and lives of people with rare diseases, the Fondation Maladies Rares is organizing e-health & rare diseases co-design workshops to accompany, advise and support project leaders and help them take action.  

6 projects will be selected to benefit from co-design workshops on Thursday, April 11, 2024, and 3 of them will receive support to the tune of €5,000, following this call for applications and the co-design workshop.

Submission deadline: Thursday, January 25, 2024, 5pm (CET)

With the support of the Société Française de Santé Digitale

If you have any questions, please contact: gaelle.dombu-smeets@fondation-maladiesrares.com

CALL FOR PARTNERSHIP PROJECTS

Call for projects ASTB France - " Research on Tuberous Sclerosis of Bourneville".

In view of the specific nature of the field of rare diseases, the Association Sclérose Tubéreuse de Bourneville France (ASTB France) and the Fondation Maladies Rares (FMR) have agreed to form a partnership to support and stimulate fundamental, translational and clinical research into Tuberous Sclerosis of Bourneville. partnership to support and stimulate fundamental, translational and clinical research into Tuberous Sclerosis of Bourneville.. All biomedical disciplines are eligible for this call for projects.

Maximum budget: €150,000

Maximum duration: 36 months

Submission deadline January 18, 2024, 5pm (Paris time).

If you have any questions, please contact : aap.asso@fondation-maladiesrares.com

OUR CALLS FOR PROJECTS 

Call for projects "Development of experimental models for rare diseases

The Fondation Maladies Rares is pleased to announce the launch of its 2023 call for projects to promote the development of new experimental models of rare diseases, in order to :

- Improving understanding of the molecular and cellular basis of rare diseases

- Provide therapeutic proof-of-concept leading to future therapies

This call will provide financial support for the creation of new experimental models for rare diseases.

If you have any questions, please contact : aap.bio@fondation-maladiesrares.com

Partner platforms

For its Calls for Projects on high throughput sequencing, screening and the creation of animal models, the Foundation relies on partner platforms of expertise. We invite you to contact these platforms directly to set up your projects.

Rare Diseases and Pain Prize - APICIL Foundation

Since 2022, the APICIL Foundation has joined forces with the Foundation For Rare Diseases to reward an innovative project in the field of rare diseases and pain by offering a "Rare Diseases and Pain" prize of €15,000.
This prize, awarded to the project leader, enables a French research team to develop a research project on this theme that is so important for patients and is sometimes still too little studied.

Rare Diseases and Pain Award - ALNYLAM

Since 2020, Alnylam Pharmaceuticals has been committed to the Foundation For Rare Diseases to reward innovative projects using RNA interference technology in the field of rare diseases.
Each year, a €20,000 prize is awarded to an established researcher, scientific leader of a team attached to a French research organization, who has contributed through his or her research to major advances in the field of rare diseases.