OUR ACTIONS

Funding of scientific projects

Our calls for projects (AAPs)

The Foundation For Rare Diseases supports excellent research to understand the causes and pathophysiological mechanisms of rare diseases, to develop new treatments, and to improve the lives of patients.

The Foundation has an active scientific policy and launches 4 to 6 calls for projects per year. It offers funding to winning research teams and access to innovative technologies such as new generation sequencing (exomes, whole genomes and new technologies of interest in this field), the development of animal models, and high-throughput screening of molecules with therapeutic potential. Expertise in these new technologies is provided by specialized technology platforms.

A registry of award-winning projects since 2012 is available

Current calls for projects

CALL FOR PARTNERSHIP PROJECTS

Call for VMOV projects - " Research on growth deficits in osteogenesis imperfecta "

Because of the specificities of the field of rare diseases, the Association Vaincre la Maladies des Osseaux de Verre (VMOV) and the Foundation For Rare Diseases (FMR) have agreed on a partnership in order to support and stimulate research on osteogenesis imperfecta growth deficits.

All biomedical disciplines are eligible for this call for projects.

Maximum budget: 120 000 €.

Maximum duration: 36 months

The deadline for submission is July 6, 2023, 5:00 PM.

For any questions, please contact : aap.asso@fondation-maladiesrares.com

CALL FOR PARTNERSHIP PROJECTS

Call for projects APEHDia - "Diaphragmatic hernia research

Due to the specificities of the field of rare diseases, the Association Pour Encourager la Recherche sur la Hernie Diaphragmatique (APEHDia) and the Foundation For Rare Diseases (FMR) have agreed on a partnership to support and stimulate basic, translational and clinical research on Diaphragmatic Dome Hernia.

All biomedicalparamedical and human and social sciences disciplines are eligible for this call for projects.

Maximum budget: €10,000

Maximum duration: 24 months

The deadline for submissions is September 14, 2023, 5 pm.

For any questions, please contact : aap.asso@fondation-maladiesrares.com

OUR CALL FOR PROJECTS 

Call for projects "Identifying therapeutic molecules
for rare diseases

The Foundation For Rare Diseases (FFRD) is pleased to launch its 2023 call for projects to identify therapeutic molecules for rare diseases to support :

  • Automated test development and compound screening,
  • Hit to Lead" campaign to develop lead candidates.

Max. budget :

  • 25,000 for assay development and screening 
  • 25,000 for the "hit to lead" campaign

The deadline for submissions is August 31, 2023, 5 pm.

If you have any questions, please contact : aap.bio@fondation-maladiesrares.com

CALL FOR PARTNERSHIP PROJECTS

Human and Social Sciences & Sickle Cell Research Grant " Novo. Nordisk

The Fondation Maladies Rares and NovoNordisk have joined forces to launch the first research grant dedicated to improving the quality of life of sickle cell disease patients.

This €30,000 grant will be awarded to a research project in the human and social sciences, the results of which will offer concrete ways of improving the day-to-day lives of patients. Particular attention will be paid to projects whose results could be transposed to other hemolytic anemias.

The deadline for submissions is September 19, 2023, 5 pm.

If you have any questions, please contact : aap.bio@fondation-maladiesrares.com

Partner platforms

For its Calls for Projects on high throughput sequencing, screening and the creation of animal models, the Foundation relies on partner platforms of expertise. We invite you to contact these platforms directly to set up your projects.

Rare Diseases and Pain Prize - APICIL Foundation

Since 2022, the APICIL Foundation has joined forces with the Foundation For Rare Diseases to reward an innovative project in the field of rare diseases and pain by offering a "Rare Diseases and Pain" prize of €15,000.
This prize, awarded to the project leader, enables a French research team to develop a research project on this theme that is so important for patients and is sometimes still too little studied.

Rare Diseases and Pain Award - ALNYLAM

Since 2020, Alnylam Pharmaceuticals has been committed to the Foundation For Rare Diseases to reward innovative projects using RNA interference technology in the field of rare diseases.
Each year, a €20,000 prize is awarded to an established researcher, scientific leader of a team attached to a French research organization, who has contributed through his or her research to major advances in the field of rare diseases.