NEWS AND EVENTS
Blog
FE-IRCEM, a committed partner at our side
The IRCEM Group's Corporate Foundation (FE-IRCEM) held its last Board meeting in a friendly but resolutely committed atmosphere...
The Lycée Joffre ran for research into rare diseases!
The Lycée Joffre in Montpellier played host to a race like no other, in an atmosphere as festive as it was committed. For an entire...
Adidas 10K Paris: a committed stride in the heart of Paris
On Sunday June 8, 2025, the streets of Paris resounded to the rhythm of the Adidas 10K Paris, an iconic urban race that brought together thousands of...
Paris on the march for hope: the story of the 2025 Paris Marathon
On Sunday April 13, 2025, the streets of Paris vibrated with the footsteps of thousands of runners, united by the same challenge: crossing the line...
Our latest winners - 2nd quarter 2025
Calls for projects in partnership: Research prize with argenx Dr Rozen Le Panse - (Centre de Recherche en Myologie, Paris) - "Blocking...
When dogs shed light on rare human diseases
What if man's best friend could also become a valuable ally in research into rare diseases? That's the challenge taken up by the "...
A look back at our scientific symposium 2025 - Towards new paths for rare diseases
On May 15, 2025, at the heart of the Cordeliers campus in Paris, a new edition of the Fondation Maladies Rares scientific symposium was held....
OUR BEAUTIFUL STORIES: Better understanding for better support - a testimonial from the Nail-Patella Syndrome Association
At the Fondation Maladies Rares, we firmly believe that research in the Humanities and Social Sciences (HSS) plays an essential role in improving...
OUR BEAUTIFUL STORIES: TELE-SLA - A major advance for ALS patients
Caring for patients with advanced amyotrophic lateral sclerosis (ALS) has long been a challenge for the healthcare system...
Our latest winners - 1st quarter 2025
Thematic calls for proposals: AAPs Identifying New Therapeutic Molecules for Rare Diseases Dr Aurélie De Thonel - (Epigenetics and...
A look back at the RE(ACT) Congress & IRDiRC Conference 2025
From March 5 to 7, 2025, Brussels hosted the RE(ACT) Congress & IRDiRC Conference, an event dedicated to rare disease research and...
On the cobbles of Paris, a race for hope: back to the Paris 2025 Half Marathon
On March 9, 2025, the streets of Paris vibrated under the feet of thousands of runners, united by the same challenge: to cross the finish line of the...