Blog

On October 7 and 8, 2025, the Cité Internationale Universitaire de Paris hosted the latest edition of Rencontres RARE. This biannual event...

On September 30, 2025, the IMS in Pessac hosted the "Research & Rare Diseases" symposium, organized around a full day of...

Once again this year, the Rare Diseases Foundation was fortunate to be represented by its director, who was present at one of the...

The IRCEM Group's Corporate Foundation (FE-IRCEM) held its last Board meeting in a friendly but resolutely committed atmosphere...

The Lycée Joffre in Montpellier played host to a race like no other, in an atmosphere as festive as it was committed. For an entire...

On Sunday June 8, 2025, the streets of Paris resounded to the rhythm of the Adidas 10K Paris, an iconic urban race that brought together thousands of...

On Sunday April 13, 2025, the streets of Paris vibrated with the footsteps of thousands of runners, united by the same challenge: crossing the line...

Calls for projects in partnership: Research prize with argenx Dr Rozen Le Panse - (Centre de Recherche en Myologie, Paris) - "Blocking...

What if man's best friend could also become a valuable ally in research into rare diseases? That's the challenge taken up by the "...

On May 15, 2025, at the heart of the Cordeliers campus in Paris, a new edition of the Fondation Maladies Rares scientific symposium was held....

At the Fondation Maladies Rares, we firmly believe that research in the Humanities and Social Sciences (HSS) plays an essential role in improving...

Caring for patients with advanced amyotrophic lateral sclerosis (ALS) has long been a challenge for the healthcare system...