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Groupama Loire-Bretagne, a loyal sponsor supporting research into rare diseases
A Long-Term Commitment For several years now, Groupama Loire-Bretagne (Groupama Foundation) has been supporting the Rare Diseases Foundation through...
The 2026 Paris Marathon and Half Marathon: A Dual Success in Sports and Community Service for Rare Diseases.
On the bustling streets of Paris, the Paris Marathon and the Paris Half Marathon once again brought together our runners, all of whom...
An innovative prosthesis for improved management of congenital diaphragmatic hernia
Congenital diaphragmatic hernia (CDH) is a rare and serious condition diagnosed at birth. It is characterized by a defect in the...
The Rare Diseases Foundation is hiring a Grant Administrator
The Rare Diseases Foundation, a scientific cooperation foundation dedicated to accelerating research on rare diseases, is expanding its...
Our community of supportive athletes Move4Rare
Born from a meeting between committed runners and the Rare Diseases Foundation, the initiative to bring together our supportive athletes to form a...
Social and therapeutic innovation for young patients with rare diseases: three winning projects supported by the IRCEM Corporate Foundation and the Rare Diseases Foundation
On Rare Disease Day, the IRCEM Corporate Foundation and the Rare Diseases Foundation are pleased to...
Living with β-thalassemia: Damien Oudin Doglioni awarded the Novo Nordisk 2025 research grant
The Rare Diseases Foundation, in partnership with the MCGRE Rare Diseases Health Network and Novo Nordisk, is proud to announce the winner of its...
The International Order of Anisetiers, "helping and giving hope"
For nearly ten years, the International Order of Anisetiers has been a key partner of the Rare Diseases Foundation. Heir to an ancient...
Our latest winners – Second semester 2025
Calls for thematic projects 2025: Omics 2025 Alain HOVNANIAN – Imagine Institute for Genetic Diseases, Paris – "Resolving undiagnosed rare...
RARE Meetings 2025: A Major Event for Rare Diseases
On October 7 and 8, 2025, the Cité Internationale Universitaire de Paris hosted the latest edition of Rencontres RARE. This biannual event...
Bordeaux "Research & Rare Diseases" Symposium: a fruitful dialogue between clinical practice, human sciences, and innovative therapies
On September 30, 2025, the IMS in Pessac hosted the "Research & Rare Diseases" symposium, organized around a full day of...
The Fondation Maladies Rares at the Grand Raid 2025!
Once again this year, the Fondation Maladies Rares was fortunate enough to be represented, by its director who was present on site, at one of the world's...