OUR SUPPORT
They are committed to us
The Great Raid
The Foundation is honored to be one of the solidarity causes of the Grand Raid, which since 2019, offers solidarity bibs to sports runners who wish to give their challenge to a solidarity dimension!
Every year, this generous gesture by the Association Le Grand Raid allows accomplished athletes to give a solidarity dimension to their sporting challenge!
How to reserve a solidarity bib with the Foundation's colors?
The trail of Haute Provence (THP)
Since 2020, the Foundation For Rare Diseases is the supporting cause of the Trail de Haute Provence (THP). This sporting event takes place in the heart of Provence every year during the month of May.
The THP offers several courses: various distances, to allow everyone to surpass themselves in a friendly spirit and to discover the Forcalquier region!
Registration for companies and individuals for 2021 is open!
Companies:
More and more managers want to mobilize their employees for sports and solidarity events. Come and surpass yourself individually or with your colleagues to advance research in rare diseases.
Individuals :
You wish to add a solidarity aspect to your race ? It is now possible on the Trail de Haute Provence! Run on one of the proposed races to advance research.
Kiwanis District France-Monaco Club
Individuals in solidarity
Kiwanis is an international service club (founded in Detroit, Michigan in 1915) whose motto is "serving children around the world.
The Kiwanis District France-Monaco has about 4700 members in more than 250 clubs in France.
Kiwanis France-Monaco has been committed for more than 6 years alongside the Foundation For Rare Diseases to fight against rare pediatric diseases, through the search for new diagnoses and new treatments. This support is expressed through events that raise awareness and publicize the cause of rare diseases throughout the country: theatrical performances, film screenings, chocolate fairs, auctions, golf tournaments, etc. There are many ways to mobilize and more than sixty clubs have already joined forces with the Foundation For Rare Diseases to accelerate research.
Testimony of Mrs. Uta Joulian, Treasurer of the Kiwanis La Seyne-Six-Fours-Saint-Mandrier, delegate for rare diseases and initiator of the operation "Red coins".
"This project, initiated two years ago, allows Kiwanis to support the Foundation For Rare Diseases in its fight against rare pediatric diseases, through the search for new diagnoses and new treatments. (...) As we (Kiwanis clubs) are very attached to the actions of the Foundation For Rare Diseases, we have launched a new collection of red coins. It is not always easy to collect money that is destined to help outside the department for research projects. (...) The good reception from the shopkeepers and the generosity of the donors are for me a real motor to continue. This project is a good way to communicate about the Foundation as well as the vocation of Kiwanis clubs."
The International Order of Anysetiers
Individuals in solidarity
The origins of the International Order of Anysetiers (OIA) date back to 1263, when the guild of anysetiers treated the sick with star anise.
The OIA promotes the values of friendship, solidarity and generosity. It organizes meetings and events for its members, friends and supporters, to raise funds for social and cultural actions. Commanderies des Anysetiers are present throughout the world.
Since 2014, at the instigation of Jack Auzerie, the OIA has maintained a long-standing friendship with the Foundation, true to its ideal of 'Helping and giving Hope'. In 10 years, €75,150 has been donated in full to research into rare diseases.
Thanks to the remarkable mobilization of regions 9 and 10, as well as the County of Valentinois, three excellent research projects have been funded:
- the first ultra-dosed formulation of methylene blue for the treatment of leishmaniasis,
- the discovery of a new cause of OAVS syndrome, enabling better diagnosis and management of patients,
- the creation of the first biological study model for children with Xeroderma pigmentosum (Moon children).
In 2023, the Bergeracois, Guyenne Occitane, Haut-Languedoc and Landes Commanderies have been particularly outstanding in their support of the Fondation Maladies Rares, and we would like to extend our warmest thanks to them.
Thanks to the support of the International Order of Anysetiers, nearly 40.000€ have already been allocated to research projects.
Apnea Solid'air
The Apnea Solid'Air association aims to promote actions to fight against rare diseases through the organization of events and the sports performances of the apneist Christophe Jobazé.
Yacht Solution
Yacht Solutions is a company specialized in the equipment of high-end sailboats and motorboats. It accompanies new boat owners in the preparation of their boat and has decided to give a solidarity aspect to its action by associating itself with the Foundation For Rare Diseases.
The Good Way
Le Bon Chemin is an association that groups together 3 activities: a communication activity and the organization of sports events, a voluntary activity for the benefit of the Foundation For Rare Diseases and an educational and training activity.
The Foundation For Rare Diseases, recognized as a public utility, is authorized to issue tax receipts to its donors. By making a donation, you benefit from an advantageous tax reduction.
For individuals
%
of tax reduction
within the limit of 20% of your household taxable income. Thus, a donation of €100 is actually €34!
For individuals who are subject to the Impôt sur la Fortune Immobilière
%
of tax reduction
Thus, a donation of 100 €
is actually 25 €.
For companies
%
of tax reduction
Up to a limit of €20,000 or 5 ‰ of annual sales excluding tax. Beyond that, the excess payment can be carried forward to the next five fiscal years. Thus, a donation of €1000 actually comes back to you at €400
Your generosity allows us to act concretely to help the 3 million people concerned in France.