OUR SUPPORT

Our partners

Partnerships

Since its creation, the Foundation For Rare Diseases has been committed to developing its social missions by creating close and personalized partnerships with professionals and civil society.

It has benefited from the financial support of its founding members and patrons, numerous and faithful donors, families and friends of people affected by rare diseases.

Together, we are fighting against rare diseases and advancing research with the best French research teams! And we thank them for their trust and commitment to our side.

Our founding partner: the AFM Telethon

The AFM Telethon is an association of patients and parents of patients whose goal is to defeat neuromuscular diseases, rare, progressive and severely disabling diseases. The AFM Telethon has been a key supporter of the Foundation since its creation in 2012.

Our privileged partners

Credit Mutuel

Sponsor with a donation to research in association with the Crédit Mutuel des Professions de Santé de Paris and partner offering visibility to rare diseases.

MSD Avenir

Funding of a research project on the identification of new therapeutic targets and drug candidates in cystic fibrosis.

IRCEM Corporate Foundation

Funding of a research project on the identification of new therapeutic targets and drug candidates in cystic fibrosis.

Partner companies

AG2R La Mondiale

Patron with the support of an award-winning project of the Foundation on the theme of parent helpers for children diagnosed with neonatal deafness, with a view to developing proposals for early intervention.

Alnylam

Sponsor of the scientific conferences organized by the Foundation in Paris and in the regions and patron of the Alnylam & Rare Diseases Prize.

CIC North West

Mecene with the support of an award-winning project of the Foundation on the deciphering of the genetic causes of congenital malformations affecting the lower limbs.

Apicil Foundation

Funding of a research prize on the theme of "Rare Diseases & Pain" since 2022 to reward an innovative scientific project in the field.

Wings Foundation

Patron with partial support of 2 winning projects, on hereditary erythrocytosis and on the prospective evaluation of antenatal ultrasound prognostic factors in complicated laparoschisis.

Groupama Loire Bretagne

Patron with the support of two prize-winning projects on the genetic causes of epilepsy in humans through canine epilepsy and on oxidative metabolism in rare diseases associated with mutations of the mitochondrial complex.

MGEFI

Patron with the support of an award-winning project of the Foundation on the dyad, couple dynamics in Huntington's Disease.

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NovoNordisk

Patron with the support of scientific events of the Foundation and the financing of a research project in sociology on Turner syndrome.

Pfizer

Patron with the support of two innovative research projects, winners of the Foundation's call for projects in the Human and Social Sciences.

Sanofi

Sponsor of the TAmDeM podcast "Training of Academics on Drug Development" on the stages of drug development.

Sarstedt

Sponsor of the Foundation by allocating 0.4% of its annual turnover to the Foundation.

SOBI

Genetics supporting a research project on chronic fatigue and cognitive functioning in patients with two rare diseases in particular.

Overcoming Cystic Fibrosis

Patron with the support of an award-winning project in Humanities and Social Sciences on the Patient Experience of the Cystic Fibrosis Pathway during the Covid-19 pandemic.

Would you like to become a partner of the Foundation For Rare Diseases in 2023?

Partner sports events

Paris Marathon

New for 2022, the Foundation is partnering with the Schneider Electric Paris Marathon to offer a touch of solidarity to those who wish to run, with their sneakers on, along the most beautiful avenues in the capital. To find out more about the event

Trail of Haute Provence

Since 2020, the Trail de Haute Provence supports the Foundation For Rare Diseases. The next edition of this sporting event will take place in the heart of Provence from October 29th to 31st 2021!

Grand Raid

Since 2018, the Grand Raid de la Réunion has been offering a few solidarity bibs to athletes who want to give a solidarity dimension to their challenge!

Partner service clubs

International Order of Anysetiers

Since 2016, the Foundation For Rare Diseases has been supported by many Commanderies of the International Order of Anysetiers who support research projects in their region.

Kiwanis District France-Monaco Club

Kiwanis France-Monaco has been committed for more than 6 years alongside the Foundation For Rare Diseases to fight against rare pediatric diseases, through the search for new diagnoses and new treatments.