OUR SUPPORT
Our partners
Partnerships
Since its creation, the Foundation For Rare Diseases has been committed to developing its social missions by creating close and personalized partnerships with professionals and civil society.
It has benefited from the financial support of its founding members and patrons, numerous and faithful donors, families and friends of people affected by rare diseases.
Together, we are fighting against rare diseases and advancing research with the best French research teams! And we thank them for their trust and commitment to our side.
Our founding partner: the AFM Telethon
The AFM Telethon is an association of patients and parents of patients whose goal is to defeat neuromuscular diseases, rare, progressive and severely disabling diseases. The AFM Telethon has been a key supporter of the Foundation since its creation in 2012.
Our privileged partners
Credit Mutuel
Sponsor with a donation to research in association with the Crédit Mutuel des Professions de Santé de Paris and partner offering visibility to rare diseases.
MSD Avenir
Funding of a research project on the identification of new therapeutic targets and drug candidates in cystic fibrosis.
IRCEM Corporate Foundation
Funding of a research project on the identification of new therapeutic targets and drug candidates in cystic fibrosis.
Partner companies
AG2R La Mondiale
Patron with the support of an award-winning project of the Foundation on the theme of parent helpers for children diagnosed with neonatal deafness, with a view to developing proposals for early intervention.
Alnylam
Sponsor of the scientific conferences organized by the Foundation in Paris and in the regions and patron of the Alnylam & Rare Diseases Prize.
CIC North West
Mecene with the support of an award-winning project of the Foundation on the deciphering of the genetic causes of congenital malformations affecting the lower limbs.
Apicil Foundation
Funding of a research prize on the theme of "Rare Diseases & Pain" since 2022 to reward an innovative scientific project in the field.
Wings Foundation
Patron with partial support of 2 winning projects, on hereditary erythrocytosis and on the prospective evaluation of antenatal ultrasound prognostic factors in complicated laparoschisis.
Groupama Loire Bretagne
Patron with the support of two prize-winning projects on the genetic causes of epilepsy in humans through canine epilepsy and on oxidative metabolism in rare diseases associated with mutations of the mitochondrial complex.
MGEFI
Patron with the support of an award-winning project of the Foundation on the dyad, couple dynamics in Huntington's Disease.
NovoNordisk
Patron with the support of scientific events of the Foundation and the financing of a research project in sociology on Turner syndrome.
Pfizer
Patron with the support of two innovative research projects, winners of the Foundation's call for projects in the Human and Social Sciences.
Sanofi
Sponsor of the TAmDeM podcast "Training of Academics on Drug Development" on the stages of drug development.
Sarstedt
Sponsor of the Foundation by allocating 0.4% of its annual turnover to the Foundation.
SOBI
Genetics supporting a research project on chronic fatigue and cognitive functioning in patients with two rare diseases in particular.
Overcoming Cystic Fibrosis
Patron with the support of an award-winning project in Humanities and Social Sciences on the Patient Experience of the Cystic Fibrosis Pathway during the Covid-19 pandemic.
Would you like to become a partner of the Fondation Maladies Rares in 2024?
Partner sports events
Paris Marathon
New for 2022, the Foundation is partnering with the Schneider Electric Paris Marathon to offer a touch of solidarity to those who wish to run, with their sneakers on, along the most beautiful avenues in the capital. To find out more about the event
Grand Raid
Since 2018, the Grand Raid de la Réunion has been offering a few solidarity bibs to athletes who want to give a solidarity dimension to their challenge!
Partner service clubs
International Order of Anysetiers
Since 2016, the Foundation For Rare Diseases has been supported by many Commanderies of the International Order of Anysetiers who support research projects in their region.
Kiwanis District France-Monaco Club
Kiwanis France-Monaco has been committed for more than 6 years alongside the Foundation For Rare Diseases to fight against rare pediatric diseases, through the search for new diagnoses and new treatments.