« Human and Social Sciences & Rare Diseases » call for proposals
The Foundation For Rare Diseases is launching the tenth call for projects « Human and Social Sciences & Rare Diseases » which aims to better understand the individual, family and social consequences specifically related to the rarity of the disease and to increase knowledge on the specific impact of these diseases in terms of disability and quality of life.
Through this call for projects, the Foundation For Rare Diseases will support pilot projects or extensions of projects, with a maximum duration of 6 to 18 months, for a maximum budget of 30 000 €. All rare diseases of children and adults are concerned.
As part of the Foundation For Rare Diseases’s participation in the University Hospital Cure Overgrowth Syndromes Network (RHU COSY), 3 projects dealing with the problems of people affected by hypergrowth syndromes may be supported for a maximum duration of 12 months.
In addition, in partnership with the association Vaincre la Mucoviscidose, one to two projects in the field of social sciences and humanities may be financed, the results of which will contribute directly or indirectly to improving the care and life course of patients.
The projects will have to formulate a research question, whose benefits will be transposable to other pathologies, involving at least one research team in SHS, a medical team specialized in rare diseases and a patient association. Finally, the applicant must be an expert in the field of SHS.
The objective of this call for projects is to promote the implementation of synergies between researchers in the humanities and social sciences, experts in the medical management of rare diseases (Centres de Référence Maladies Rares, Centres de Compétences, Filières de Santé Maladies Rares), patient associations, and experts in social and medico-social support.
It thus encourages the transdisciplinarity of research projects in human and social sciences in the field of rare diseases and is open to all disciplines in human and social sciences.
Deadline for submission: June 1st, 2022 at 5pm.
For any questions, please contact us email@example.com