The members of the Organizing Committee and the Scientific Committee of the Congress would like to thank the 800 participants, 50 speakers, 67 poster presenters and 22 partners for their trust and participation.
Despite its digital format, this congress was a real success.
The replays will be online soon on the website https://rareparis.com.
Event placed under the high patronage of the Ministry of Solidarity and Health and the Ministry of Higher Education, Research and Innovation.
"If Madame Macron regrets not being able to respond favorably to your request due to a particularly constrained agenda, you can nevertheless be sure of the attention she pays to the cause of rare diseases. She is therefore very pleased with the commitment of the Rare Diseases Foundation to the service of people affected by rare diseases.
The Government is determined to carry out, through concrete measures, a proactive and supportive policy involving a strong mobilization of all the partners concerned. It is in this context that the 3rd National Plan for Rare Diseases 2018-2022 was launched, intended to reduce diagnostic wandering and deadlock, as well as to promote the development of new treatments and rapid access for patients to therapeutic innovations that are authorized or in the process of being authorized."