At the Fondation Maladies Rares, we firmly believe that research in the Humanities and Social Sciences (HSS) plays an essential role in improving...
NEWS AND EVENTS
Blog
OUR BEAUTIFUL STORIES: TELE-SLA - A major advance for ALS patients
Caring for patients with advanced amyotrophic lateral sclerosis (ALS) has long been a challenge for the healthcare system...
Our latest winners - 1st quarter 2025
Thematic calls for proposals: AAPs Identifying New Therapeutic Molecules for Rare Diseases Dr Aurélie De Thonel - (Epigenetics and...
A look back at the RE(ACT) Congress & IRDiRC Conference 2025
From March 5 to 7, 2025, Brussels hosted the RE(ACT) Congress & IRDiRC Conference, an event dedicated to rare disease research and...
On the cobbles of Paris, a race for hope: a look back at the Paris 2024 Half Marathon
On March 9, 2025, the streets of Paris vibrated under the feet of thousands of runners, united by the same challenge: to cross the finish line of the...
Announcement of the AMARAPE AAP and Miss Kieffer Research Prize winners
We are delighted to announce the winners of the Call for Projects and Research Award launched jointly with the AMARAPE association! These...
Announcement of the Winners of the ASL-HSP 2024 Call for Projects
We are delighted to share the results of the ASL-HSP 2024 Call for Projects, a collaborative initiative to support research into the...
Announcement of the winners of the AFAF 2024 Call for Projects
We are pleased to announce the results of the AFAF 2024 Call for Projects, a joint initiative to stimulate research into Ataxia...
Announcement of the winners of the "Pathophysiology of osteogenesis imperfecta" 2024 Call for Projects
We are delighted to announce the winners of VMOV France's "Pathophysiology of osteogenesis imperfecta" Call for Projects, launched...
Social innovation for young rare disease patients: Promising projects supported by the Fondation Maladies Rares and the IRCEM Corporate Foundation
The Fondation Maladies Rares is pleased to announce the results of its call for projects "Social and therapeutic innovations for...
Discover the winners of the Call for Projects "Genomics 2024: Next Generation Sequencing for the Study of Rare Diseases".
It is with great pleasure that we announce the winning teams of the Genomics 2024 call for projects.Congratulations to the winners and their projects...
Solidarity in Action: Our Heroes of the Grand Raid 2024
On the wild and steep paths of Reunion Island, the Grand Raid 2024 once again brought together our runners, all united by...