NEWS AND EVENTS
It is with great pleasure that we announce the winning teams of the Genomics 2024 call for projects.Congratulations to the winners and their projects...
On the wild and steep paths of Reunion Island, the Grand Raid 2024 once again brought together our runners, all united by...
We are pleased to announce the winner of the "Tuberous Sclerosis of Bourneville" Call for Projects, launched by the ASTB France association in...
The Fondation Maladies Rares is honored to announce that, for the next 7 years, it will host the scientific secretariat...
April 11, 2024 marked a significant milestone in the field of e-health with the meeting of 40 project leaders and experts at the...
In the bustling streets of Paris, the Paris Marathon and the Paris Half Marathon once again brought together our runners in solidarity, all united...
We would like to thank all those who took part in the Colloque Scientifique Recherche Maladies Rares 2024, held on Friday March 15...
On the occasion of International Rare Diseases Day 2024, the Plateforme Maladies Rares held a press conference. A highlight that...
The winners of the "Innovative Proofs of Concept for Rare Diseases" call for projects launched by the AFM-Téléthon and the Fondation...
The International Order of Anysetiers renews its support for the Foundation for Rare Disease Research As 2023 draws to a close, the...
The Fondation Maladies Rares, in partnership with Novo Nordisk, is proud to announce the winner of the research grant "Amélioration de la...
Rencontres RARE is a central event for the rare disease community, bringing together doctors, scientists, patients, public decision-makers,...