Thanks to support from the VHL Association and the Rare Diseases Foundation, a research group at the Thorax Institute has succeeded in creating the very first...
A First Cellular Model to Unravel the Mysteries of von Hippel-Lindau Disease
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NEWS AND EVENTS
Blog
"When a Dream Comes True"
I had a dream. I had a dream that seemed far away. To participate in the Diagonale des fous. My name is Wilfrid, I'm 56 years old, and I've been an athlete since...
UCB, working alongside us to bring our research and events to life
A Key Player at Our 2026 National Symposium A loyal partner of the Rare Diseases Foundation since 2023, UCB strengthened its commitment in 2026 by...
A Look Back at the Rare Diseases Foundation's 2026 Annual Scientific Symposium
Yesterday, the Rare Diseases Foundation brought together researchers, clinicians, patient organizations, patients, and partners at the Paris Faculty of Pharmacy for its...
Groupama Loire-Bretagne, a loyal sponsor supporting research into rare diseases
A Long-Term Commitment For several years now, Groupama Loire-Bretagne (Groupama Foundation) has been supporting the Rare Diseases Foundation through...
The 2026 Paris Marathon and Half Marathon: A Dual Success in Sports and Community Service for Rare Diseases.
On the bustling streets of Paris, the Paris Marathon and the Paris Half Marathon once again brought together our runners, all of whom...
An innovative prosthesis for improved management of congenital diaphragmatic hernia
Congenital diaphragmatic hernia (CDH) is a rare and serious condition diagnosed at birth. It is characterized by a defect in the...
The Rare Diseases Foundation is hiring a Grant Administrator
The Rare Diseases Foundation, a scientific cooperation foundation dedicated to accelerating research on rare diseases, is expanding its...
Our community of supportive athletes Move4Rare
Born from a meeting between committed runners and the Rare Diseases Foundation, the initiative to bring together our supportive athletes to form a...
Social and therapeutic innovation for young patients with rare diseases: three winning projects supported by the IRCEM Corporate Foundation and the Rare Diseases Foundation
On Rare Disease Day, the IRCEM Corporate Foundation and the Rare Diseases Foundation are pleased to...
Living with β-thalassemia: Damien Oudin Doglioni awarded the Novo Nordisk 2025 research grant
The Rare Diseases Foundation, in partnership with the MCGRE Rare Diseases Health Network and Novo Nordisk, is proud to announce the winner of its...
The International Order of Anisetiers, "helping and giving hope"
For nearly ten years, the International Order of Anisetiers has been a key partner of the Rare Diseases Foundation. Heir to an ancient...