It is with great pleasure that we announce the winning teams of the Genomics 2024 call for projects.Congratulations to the winners and their projects...
NEWS AND EVENTS
Blog
Solidarity in Action: Our Heroes of the Grand Raid 2024
On the wild and steep paths of Reunion Island, the Grand Raid 2024 once again brought together our runners, all united by...
Announcement of the winner of the "Bourneville Tuberous Sclerosis" Call for Projects
We are pleased to announce the winner of the "Tuberous Sclerosis of Bourneville" Call for Projects, launched by the ASTB France association in...
The Fondation Maladies hosts IRDiRC's scientific secretariat for 7 years.
The Fondation Maladies Rares is honored to announce that, for the next 7 years, it will host the scientific secretariat...
Ateliers de Co-design en E-santé 2024 unveil 5 innovative projects for Rare Diseases
April 11, 2024 marked a significant milestone in the field of e-health with the meeting of 40 project leaders and experts at the...
A look back at the 2024 Paris Marathon and Half-Marathon, united for research on rare diseases.
In the bustling streets of Paris, the Paris Marathon and the Paris Half Marathon once again brought together our runners in solidarity, all united...
A look back at the Nancy/Reims Regional Scientific Symposium on Rare Disease Research!
We would like to thank all those who took part in the Colloque Scientifique Recherche Maladies Rares 2024, held on Friday March 15...
Plateforme maladies rares press conference on the occasion of International Rare Disease Day 2024
On the occasion of International Rare Diseases Day 2024, the Plateforme Maladies Rares held a press conference. A highlight that...
Winners of the 2023 "Innovative Therapeutic Proofs of Concept in Rare Diseases" Call for Projects
The winners of the "Innovative Proofs of Concept for Rare Diseases" call for projects launched by the AFM-Téléthon and the Fondation...
MANY THANKS TO THE ANYSETIERS
The International Order of Anysetiers renews its support for the Foundation for Rare Disease Research As 2023 draws to a close, the...
The Fondation Maladies Rares and Novo Nordisk Announce the Winner of the 2023 Research Grant for Improving the Quality of Life of Patients with Sickle Cell Disease "
The Fondation Maladies Rares, in partnership with Novo Nordisk, is proud to announce the winner of the research grant "Amélioration de la...
Overview of RARE 2023 meetings
Rencontres RARE is a central event for the rare disease community, bringing together doctors, scientists, patients, public decision-makers,...