April 11, 2024 marked a significant milestone in the field of e-health with the meeting of 40 project leaders and experts at the...
Ateliers de Co-design en E-santé 2024 unveil 5 innovative projects for Rare Diseases
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NEWS AND EVENTS
Blog
A look back at the 2024 Paris Marathon and Half-Marathon, united for research on rare diseases.
In the bustling streets of Paris, the Paris Marathon and the Paris Half Marathon once again brought together our runners in solidarity, all united...
A look back at the Nancy/Reims Regional Scientific Symposium on Rare Disease Research!
We would like to thank all those who took part in the Colloque Scientifique Recherche Maladies Rares 2024, held on Friday March 15...
Plateforme maladies rares press conference on the occasion of International Rare Disease Day 2024
On the occasion of International Rare Diseases Day 2024, the Plateforme Maladies Rares held a press conference. A highlight that...
Winners of the 2023 "Innovative Therapeutic Proofs of Concept in Rare Diseases" Call for Projects
The winners of the "Innovative Proofs of Concept for Rare Diseases" call for projects launched by the AFM-Téléthon and the Fondation...
MANY THANKS TO THE ANYSETIERS
The International Order of Anysetiers renews its support for the Foundation for Rare Disease Research As 2023 draws to a close, the...
The Fondation Maladies Rares and Novo Nordisk Announce the Winner of the 2023 Research Grant for Improving the Quality of Life of Patients with Sickle Cell Disease "
The Fondation Maladies Rares, in partnership with Novo Nordisk, is proud to announce the winner of the research grant "Amélioration de la...
Overview of RARE 2023 meetings
Rencontres RARE is a central event for the rare disease community, bringing together doctors, scientists, patients, public decision-makers,...
L'Épopée des Coureurs Solidaires: Many thanks for the Grand Raid 2023
🏃♀️🏃♂️ A big thank you to our runners who supported this year's Grand Raid! 🏃♀️🏃♂️ We would like to express our deepest gratitude...
Our winners of the "Translational Research" call for projects
The Fondation Maladies Rares is pleased to unveil the results of its 2023 call for "Translational Research" projects, as part of...
Bibs for the Paris 2024 Half Marathon
💙 Solidarity bibs for the Paris 2024 Half Marathon are now available, marking a major event to come in the...
The MOOC "Translational Research" is now open!
From today until December 2, mentors and educators specializing in the field will be available online to answer...