Born from a meeting between committed runners and the Rare Diseases Foundation, the initiative to bring together our supportive athletes to form a...
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NEWS AND EVENTS
Blog
Social and therapeutic innovation for young patients with rare diseases: three winning projects supported by the IRCEM Corporate Foundation and the Rare Diseases Foundation
On Rare Disease Day, the IRCEM Corporate Foundation and the Rare Diseases Foundation are pleased to...
Living with β-thalassemia: Damien Oudin Doglioni awarded the Novo Nordisk 2025 research grant
The Rare Diseases Foundation, in partnership with the MCGRE Rare Diseases Health Network and Novo Nordisk, is proud to announce the winner of its...
The International Order of Anisetiers, "helping and giving hope"
For nearly ten years, the International Order of Anisetiers has been a key partner of the Rare Diseases Foundation. Heir to an ancient...
Our latest winners – Second semester 2025
Calls for thematic projects 2025: Omics 2025 Alain HOVNANIAN – Imagine Institute for Genetic Diseases, Paris – "Resolving undiagnosed rare...
RARE Meetings 2025: A Major Event for Rare Diseases
On October 7 and 8, 2025, the Cité Internationale Universitaire de Paris hosted the latest edition of Rencontres RARE. This biannual event...
Bordeaux "Research & Rare Diseases" Symposium: a fruitful dialogue between clinical practice, human sciences, and innovative therapies
On September 30, 2025, the IMS in Pessac hosted the "Research & Rare Diseases" symposium, organized around a full day of...
The Fondation Maladies Rares at the Grand Raid 2025!
Once again this year, the Fondation Maladies Rares was fortunate enough to be represented, by its director who was present on site, at one of the world's...
FE-IRCEM, a committed partner at our side
The IRCEM Group's Corporate Foundation (FE-IRCEM) held its last Board meeting in a friendly but resolutely committed atmosphere...
The Lycée Joffre ran for research into rare diseases!
The Lycée Joffre in Montpellier played host to a race like no other, in an atmosphere as festive as it was committed. For an entire...
Adidas 10K Paris: a committed stride in the heart of Paris
On Sunday June 8, 2025, the streets of Paris resounded to the rhythm of the Adidas 10K Paris, an iconic urban race that brought together thousands of...
Paris on the march for hope: the story of the 2025 Paris Marathon
On Sunday April 13, 2025, the streets of Paris vibrated with the footsteps of thousands of runners, united by the same challenge: crossing the line...