The Rare Diseases Foundation is pleased to announce the launch of its call for research projects 'GenOmics: high throughput sequencing &...
NEWS AND EVENTS
Blog
Closing of the RARE 21 Conference
The members of the Organizing Committee and the Scientific Committee of the Congress would like to express their warmest thanks to the 800 participants, 50 of whom are...
New donation from the Kiwanis Club of the West Var
The Kiwanis Club of the West Var and the association Les Blouses Roses gave a check of 4 000 euros to the benefit of the Foundation for Rare Diseases and...
AFM-Telethon and the Foundation launch a call for projects dedicated to Rare Diseases Health Networks
This Friday, October 15, during the RARE 2021 Congress, Laurence Tiennot-Herment, President of the AFM-Telethon, announced the launch of a...
Two winners / AAP AMMi and FMR
The Foundation For Rare Diseases and the association AMMi have jointly launched a call for projects on the MTFMT gene and Leigh syndrome. Two projects...
ITW #part 1 - Meet the RHU-Cosy lab team
The RHU-COSY is a joint initiative of 11 partners, which includes 2 hospitals (Necker - Enfants Malades AP HP and Hôpital Mère Enfant HCL), 6...
Opening of the RARE congress platform
To access the Congress, click on the link of the platform: https://www.ivmhealth.com/rencontresrare.html Enter the Congress and...
Testimony of the HPN-AM Association
Our Association HPN France - Medullary Aplasia, created in 2004, raises funds to support research on Paroxysmal Hemoglobinuria...
International Order of Anysetiers of TULLE - VAL de CORREZE
The Commanderies of the International Order of Anysetiers, true service clubs, bring together men and women to exchange and together...
Lydia supports the Foundation!
Lydia supports the Rare Diseases Foundation! You can now support the Foundation's activities in a few clicks directly from your computer.
Launch of the new MOOC#1 session, EJP-RD
The new session of the MOOC* "Diagnosing Rare Diseases: from the Clinic to Research and back" starts today. Registration is now open!...
AFM-Telethon's Fête de la Science 21
From October 4 to 8, come to the lab for an exceptional science festival. Thanks to you, nearly 1000 experts, supported by the AFM-Telethon, will be present...