As part of its participation in the Cure Overgrowth Syndromes University Hospital Network (RHU COSY - www.rhu-cosy.com), the Rare Diseases Foundation is launching a call for projects "Human and Social Sciences & Hypergrowth Syndromes". It aims to better understand the individual, family and social consequences specifically related to hypergrowth syndromes in children and adults and to increase knowledge on thespecific impact of these diseases in terms of disability and quality of life.
The final objective of this call for research projects is to improve the life course of the persons concerned and their entourage, from the search for a diagnosis to the provision of care and support.
Through this call for projects, the RHU COSY will support pilot projects or project extensions, with a maximum duration of 18 months and a maximum budget of €80,000.
The deadline for submission is May 11, 2023, 5:00 PM (Paris time).