NEWS AND EVENTS
Blog
Scientific symposium dedicated to gene therapy
The Gene Therapy Revolution Underway: The Latest Advances" is a scientific symposium dedicated to gene therapy that will be held on...
IUD - Genetic Diseases: Transdisciplinary Approach
The program of the Inter-University Diploma (IUD) Genetic Diseases: Transdisciplinary Approach for the year 2022 / 2023 is open to the...
Death of Professor Jean-Jacques Cassiman
It is with great sadness that we learned of the death of our colleague and friend, and long-time member of the Board of Directors of the...
Our 2021 activity report is online
Discover all our actions and successes in favor of rare disease research in 2021 through our activity report...
Winners of the Call for Projects for Rare Diseases Health Networks
The Rare Diseases Foundation is very pleased to announce the winners of the joint Call for Projects "Health Networks for Rare Diseases"...
ERN Workshop - Rhabdoid tumors in clinic and research: From basic biology to the patient bed
In the context of EJP RD's ERN Workshops, a face-to-face workshop entitled "Rhabdoid tumors in clinic and research: From basic...
Groupama Foundation's 2023 Social Innovation Award
The Foundation has just launched its call for applications for the 2023 Social Innovation Award. With a prize of €20,000, this prize rewards each...
EJP RD Innovation Management Toolbox
EJP RD is delighted to announce the launch on June 30th, 2022 of the Innovation Management Toolbox (IMT), a free-to-use and...
Call for projects "Development of experimental models for rare diseases
The Rare Diseases Foundation launches its 2022 call for projects for the development of new experimental models for rare diseases. This call for...
EJP RD: Dissemination of EJP RD ERICA Workshop "Ethics and regulatory considerations for ERN Data Access Committee members
We are happy to invite you to take part in a workshop addressing "Ethics and regulatory considerations for ERN Data Access Committee members". This...
Winner 2022 Alnylam Award
Rare Diseases Foundation & Alnylam Pharmaceuticals Award At our Annual Scientific Symposium we presented the Research Award to Alnylam Pharmaceuticals.
Kavli 2022 Award
Congratulations to our President Jean-Louis Mandel, winner of the Kavli 2022 Prize! The Norwegian Academy of Sciences and Letters announced on the 1st of...







