NEWS AND EVENTS
Blog
Announcement of the AMARAPE AAP and Miss Kieffer Research Prize winners
We are delighted to announce the winners of the Call for Projects and Research Award launched jointly with the AMARAPE association! These...
Announcement of the Winners of the ASL-HSP 2024 Call for Projects
We are delighted to share the results of the ASL-HSP 2024 Call for Projects, a collaborative initiative to support research into the...
Announcement of the winners of the AFAF 2024 Call for Projects
We are pleased to announce the results of the AFAF 2024 Call for Projects, a joint initiative to stimulate research into Ataxia...
Announcement of the winners of the "Pathophysiology of osteogenesis imperfecta" 2024 Call for Projects
We are delighted to announce the winners of VMOV France's "Pathophysiology of osteogenesis imperfecta" Call for Projects, launched...
Social innovation for young rare disease patients: Promising projects supported by the Fondation Maladies Rares and the IRCEM Corporate Foundation
The Fondation Maladies Rares is pleased to announce the results of its call for projects "Social and therapeutic innovations for...
Discover the winners of the Call for Projects "Genomics 2024: Next Generation Sequencing for the Study of Rare Diseases".
It is with great pleasure that we announce the winning teams of the Genomics 2024 call for projects.Congratulations to the winners and their projects...
Solidarity in Action: Our Heroes of the Grand Raid 2024
On the wild and steep paths of Reunion Island, the Grand Raid 2024 once again brought together our runners, all united by...
Announcement of the winner of the "Bourneville Tuberous Sclerosis" Call for Projects
We are pleased to announce the winner of the "Tuberous Sclerosis of Bourneville" Call for Projects, launched by the ASTB France association in...
The Fondation Maladies hosts IRDiRC's scientific secretariat for 7 years.
The Fondation Maladies Rares is honored to announce that, for the next 7 years, it will host the scientific secretariat...
Ateliers de Co-design en E-santé 2024 unveil 5 innovative projects for Rare Diseases
April 11, 2024 marked a significant milestone in the field of e-health with the meeting of 40 project leaders and experts at the...
A look back at the 2024 Paris Marathon and Half-Marathon, united for research on rare diseases.
In the bustling streets of Paris, the Paris Marathon and the Paris Half Marathon once again brought together our runners in solidarity, all united...
A look back at the Nancy/Reims Regional Scientific Symposium on Rare Disease Research!
We would like to thank all those who took part in the Colloque Scientifique Recherche Maladies Rares 2024, held on Friday March 15...