E-HEALTH ACTIONS

CO-DESIGN WORKSHOPS

The Foundation For Rare Diseases supports the emergence of innovative projects in e-health & rare diseases, in particular through annual co-design workshops. These days of meetings and interdisciplinary collaborative work are designed to concretely support the initiation of e-health projects, targeting the major challenges for rare diseases. In particular: reducing diagnostic error and inequalities in care and life paths. The project also aims to document – through concrete examples provided by actors in the field – the digital health needs that would be the most efficient for complex and chronic diseases, in an approach that can be transposed to many health situations.

  • 10 projects supported , selected by a jury of experts
  • More than 40 experts mobilized in many disciplinary fields for individualized workshop support (technology, human and social sciences and new technologies, law, ethics, IA, Deeptech, Business Model, etc.)
  • Anyone in the field who has an idea for an e-health project with a concrete application for rare diseases,
  • Association of diseases and families, health professional, other professional involved in the care process, researchers, individuals concerned.

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