by BaptisteCrestey | Apr 18, 2019
Les Rencontres RARE 2019 is the 6th edition of a meeting organized every 2 years, to promote a health and research policy at the service of people with rare diseases. Supported by the Fondation Maladies Rares, this year's event will take place on...
by BaptisteCrestey | Apr 18, 2019
2nd edition of the "Les Étoiles Rares" gala dinner to be held on May 23, 2019. This charity evening will include a gourmet dinner followed by an auction of exceptional wines to benefit research into rare diseases. All proceeds...
by BaptisteCrestey | Apr 18, 2019
The first "Journée Recherche Maladies Rares", co-organized by the Institut de Génomique Fonctionnelle and the Fondation Maladies Rares, will take place on June 11 in Montpellier (Genopolys). Day's objectives: to present biomedical research projects in the field of...
by BaptisteCrestey | Mar 7, 2019
The CHU de Bordeaux and the Fondation maladies rares are organizing a day dedicated to research, divided into 4 sessions: Session 1: The importance of studying the natural history of rare diseases Session 2: Deciphering the pathophysiology of rare diseases...
