Webinars for the general public to better understand research

‘Health Data & Rare Diseases’

The Rare Diseases Foundation, the Health Data Platform, the BNDMR, and France Assos Santé invite you to a series of three webinars on health data and rare diseases, designed for patient organizations.

L’objectif : mieux comprendre ce que sont les données de santé, comment elles sont utilisées dans la recherche, et comment les associations peuvent agir.

Episode 3:

Access, Governance, and Usage: What Role Do Nonprofits Play?

With Arthur Dauphin & Alain Olympie (France Assos Santé) and Caroline Guillot & Eliza Regnier (Health Data Platform)

📅Date: December 3, 2026

🕧 Time: 12:30 p.m. - 1:30 p.m.

📍 Location: Online