Regional Scientific Symposium on “Research & Rare Diseases”

INFORMATION REGARDING THE PROCESSING OF PERSONAL DATA IN THE CONTEXT OF REGISTRATION FOR THE REGIONAL SCIENTIFIC SYMPOSIUM 'RESEARCH & RARE DISEASES' As a future participant in the regional symposium 'Research & Rare Diseases', the information collected about you will be processed by the Rare Diseases Foundation. This processing is necessary for registering your participation and gathering your feedback on the event through a satisfaction questionnaire. In accordance with Law No. 2018-493 of June 20, 2018, on the Protection of Personal Data, as amended by the French Data Protection Act of January 6, 1978, and the General Data Protection Regulation (EU Regulation 2016/679), you are hereby informed that your personal data is recorded for the purposes listed above and is collected and processed by the Rare Diseases Foundation. This information is intended for the data controller for administrative and charitable purposes. The processing of your registration is based on the legal basis of consent for the Rare Diseases Foundation, which relies on your wish to participate in this event. The personal data collected by the Rare Diseases Foundation is adequate, relevant, and limited to what is necessary for the purposes for which it is processed. Specifically, we collect: last name, first name, email address, city, occupation, legal guardianship, and allergies. The recipients of this data are authorized departments of the Rare Diseases Foundation who need this information. Furthermore, this data may be shared with our service providers, who are data processors as defined by the General Data Protection Regulation (GDPR). The Rare Diseases Foundation only works with data processors who provide sufficient guarantees regarding the implementation of appropriate technical and organizational measures to ensure that the processing complies with applicable regulations and guarantees the protection of your rights. No personal data is transferred to a country outside the European Union. As part of your registration and the collection of your feedback on the event via a satisfaction questionnaire, the personal data collected is kept for one (1) month after the event. In accordance with legal and regulatory provisions, you have the right to access, rectify, delete, and restrict the processing of your personal data. You may withdraw your consent at any time. You can exercise your rights by contacting us at the following email address: contact@fondation-maladiesrares.com or by mail at the following address: Fondation Maladies Rares, Plateforme maladies rares, 96 rue Didot, 75014 Paris, France. Your request must include your first and last name, email or postal address, be signed, and be accompanied by a valid form of identification.