The European Joint Programme on Rare Diseases (European Joint Programme on Rare Diseases - EJP RD) is developing a series of MOOCs (Massive Open Online Courses) on topics related to rare disease research.
The Foundation For Rare Diseases, a partner of the EJP RD, is coordinating the development of the project.
The first MOOC entitled "Diagnosing Rare Diseases: from the Clinic to Research and back" is now open for registration. The first session will begin on April 26, 2021.
Register here: https://www.futurelearn.com/courses/rare-genetic-disease
It was co-developed by representatives of theERN Ithaca (Pr Laurence Faivre, CHU Dijon, AnDDI-Rares, FHU Translad), theERN Genturis (Dr Chrystelle Colas, Institut Curie) and the Rare Diseases Foundation (Roseline Favresse, Emilie Bonnaud). Dr Virginie Bros-Facer (Eurordis) and Dr Evan Gouy (Hospices Civils de Lyon) also provided support throughout the development of this course.
Duration: 5 weeks
Number of hours per week: 3