Press Conference - International Rare Disease Day

February 25, 2020 | News

The 13th edition of Rare Disease Day will take place on Saturday, February 29, 2020.
The different entities of the Rare Disease Platform organized a press conference around a study conducted by Orphanet and EURORDIS which shows that more than 300 million people live with a rare disease in the world today.
The presentation of these figures was followed by 3 poignant testimonies of people living with a rare disease.