The Rare Diseases Foundation launches its new call for research projects in the humanities and social sciences in the field of rare diseases, The date...
NEWS AND EVENTS
Blog
LIVE - WEB EMISSION: Artificial intelligence and rare diseases
On September 11, 2019, you can watch the Foundation's live webcast on "Artificial Intelligence and Rare Diseases", in...
Call for Projects - Implementation of expertise platforms
The DGOS publishes an information note on its 2019 call for projects for the implementation of expertise platforms in the field of...
Call for projects from the Direction Générale de l'Offre de Soins (DGOS)
The DGOS is launching a call for proposals for the production of Patient Therapeutic Education (PTE) programs for rare diseases.
Conference on Rare Diseases organized by the International Order of Anysetiers of the Commanderie des Landes
On September 1, 2019, the International Order of Anysetiers of the Landes Commandery will hold a Rare Disease Conference to...
Hopsimédia: a challenge to the km for the Foundation
Since April 1st, Hospimedia supports the Foundation For Rare Diseases. The "Hospi'Runners" accumulate the kilometers they run during their...
UTMB 2019 edition ends
The Foundation is one of the solidarity causes of the Ultra Trail du Mont Blanc. This year, 29 runners have chosen to wear a solidarity bib in order to support the...
Relabelling of rare disease health networks
The inter-channel booklet which presents the National Plans for Rare Diseases, the actors of rare diseases, and the 23 channels is updated. For...
Foundation releases 2018 activity report
In this report, you will find a description of the Foundation's main missions and the results it has achieved, as well as the projects it has supported in...
Discover our Scientific Council
Discover the portrait of Professor Francesc PALAU, member of our Scientific Council by clicking here.
Discover our Scientific Council
Discover the portrait of Professor Pierre Levy, member of our Scientific Council by clicking here.
PHILOMENE survey: help us by responding to this research program
The PHILOMENE research program aims to improve the educational outcomes and career choices of children with medical conditions...