NEWS AND EVENTS
Blog
Learn about the role of the Foundation / RHU-COSY
The Foundation is a partner in the RHU-COSY (Cure Overgrowth Syndromes), a 5-year project financed by the French National Research Agency as part of the...
EURORDIS Open Academy: new online course
As part of its Open Academy site, EURORDIS has just launched its Establishing an international cooperation course, which will enable students to...
Pfizer France Science and Health Online Conference
Is science the obvious choice? For the progress of health and society This is the conclusion of the online conference organized by...
IRDiRC Publication
The International Rare Diseases Research Consortium (IRDiRC) is proud to announce the publication of a commentary on 10 years of progress and...
International Rare Diseases Day
See you on February 28th for the International Rare Diseases Day! Every year, EURORDIS, the European Federation of Rare Diseases...
Conference at the Collège de France
We have chosen to organize our annual scientific symposium at the Collège de France and to return to a face-to-face event. The purpose of this colloquium is to...
Alnylam Pharmaceuticals 2022 AWARD
Alnylam Pharmaceuticals is partnering with the Rare Diseases Foundation to reward an innovative project in the field of rare diseases with a grant...
Recruitment - Research Administration Officer
The Foundation For Rare Diseases is recruiting a research administration officer! More information here 👉 Job description
TAmDeM #1 - Target validation and choice of indications
The Rare Diseases Foundation, with the participation and support of Sanofi Genzyme, invites you to follow the TAmDeM podcast "Training of...
PODCAST TAMDEM with Sanofi Genzyme
PODCAST TAMDEM : Training of Academics on Drug Development A podcast presented by the Rare Diseases Foundation with the...
Recruitment - Communication and fundraising manager (Alternance)
The Foundation For Rare Diseases is recruiting a communication and fundraising officer on a sandwich course! The position is available immediately. More...
EJP RD ERN Workshop
In the context of EJP RD's ERN Workshops, an in-person workshop titled "Trans-ERN Working Group for Spina Bifida (Spinal Dysraphism): Workshop for...