Blog

Pierre Fabre and the EspeRare Foundation are launching EDELIFE, a clinical trial of a prenatal treatment for ectodermal dysplasia...

The Therapies Scientific Committee (TSC) of the International Rare Diseases Research Consortium (IRDiRC) is establishing a Task Force to...

IRDiRC's Therapies Scientific Committee (TSC) is establishing a Task Force on Drug Repurposing Guidebook aimed at helping developers identify...

The organization of the Grand Raid de la Réunion renews for the 4th consecutive year its support to the Foundation For Rare Diseases ! How to book...

The Foundation is a partner in the RHU-COSY (Cure Overgrowth Syndromes), a 5-year project financed by the French National Research Agency as part of the...

As part of its Open Academy site, EURORDIS has just launched its Establishing an international cooperation course, which will enable students to...

Is science the obvious choice? For the progress of health and society This is the conclusion of the online conference organized by...

The International Rare Diseases Research Consortium (IRDiRC) is proud to announce the publication of a commentary on 10 years of progress and...

See you on February 28th for the International Rare Diseases Day! Every year, EURORDIS, the European Federation of Rare Diseases...

We have chosen to organize our annual scientific symposium at the Collège de France and to return to a face-to-face event. The purpose of this colloquium is to...

Alnylam Pharmaceuticals is partnering with the Rare Diseases Foundation to reward an innovative project in the field of rare diseases with a grant...

The Foundation For Rare Diseases is recruiting a research administration officer! More information here 👉 Job description