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11th European Conference on Rare Diseases and Orphan Drugs
European policies are influenced by the individual priorities of member countries. A priori, rare diseases are on the agenda of the...
Pre-program of the Annual Scientific Conference
The Rare Diseases Foundation invites you to meet on May 31, 2022 at the Collège de France for a day of scientific exchanges around the...
Second edition of the P2M International Symposium
Precision Medicine - a new approach to more proactive and individualized health care. It is in this spirit of possibility...
Flière TETECOU - The "Mots de têtes" podcast
On the occasion of its 3rd 'Research and Innovation' Day, this Friday, March 11, the Filière de Santé Maladies Rares des malformations de la tête, du...
International Summer School 2022: Rare Disease Registries and FAIRification of Data
As part of the training activities proposed by EJP RD, the International Summer School on Rare Disease Registries and FAIRification of Data is...
Training for patient representatives and advocates on leadership and communication skills
As part of the training activities proposed by EJP RD, an international course entitled "Training for patient representatives and advocates on...
FAIRopoly
The FAIRopoly has been launched on the EJP RD website. FAIRopoly illustrates the FAIRification steps followed by the ERNs registries to make their...
IRDiRC video
On the occasion of Rare Disease Day 2022 (February 28th), the International Rare Diseases Research Consortium (IRDiRC) has released an introductory...
Research and Innovation" Day of the TETECOU Rare Diseases Health Network
The next Research and Innovation Day of the Filière de Santé Maladies Rares des malformations de la tête, du cou et des dents (TETECOU)...
ALS and motor neuron diseases: what avenues for tomorrow?
The symposium "ALS & Motor Neurone Diseases: what avenues for the future?" organized by france biotech will take place on March 17, 2010.
The European Joint Programme on Rare Diseases in now on Instagram
To commemorate Rare Disease Day (February 28th), the European Joint Programme on Rare Diseases (EJP RD) is proud to announce the launch of their...
Podcast "Rare Diseases" from the IRCEM Corporate Foundation
Our director Daniel Scherman was honored to contribute to the "Family Health Focus" podcast series from our loyal partner the Foundation...