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Joint ALBI and Foundation For Rare Diseases call for proposals - 3 winners selected
Through its joint call for proposals with the Foundation For Rare Diseases, the ALBI association is awarding funding to three research projects: - led by the...
Winners of the 'GenOmics of rare diseases' 2021 Call for Projects
The Rare Diseases Foundation is very pleased to announce the winners of the 'GenOmics of Rare Diseases' 2021 Call for Projects. After...
Call for Research Projects 2022 - France Vasculitis
The amount allocated for each project will depend on the means of the association and will amount in 2022: If the project concerns the...
MOOC "Diagnosing Rare Diseases: from the Clinic to Research and back
The third run of the MOOC (Massive Open Online Course) "Diagnosing Rare Diseases: from the Clinic to Research and back" co-developed by the European...
11th European Conference on Rare Diseases and Orphan Products
European policies are influenced by the priorities of their member countries. Rare diseases are featured on the agenda of the upcoming Trio of EU...
11th European Conference on Rare Diseases and Orphan Drugs
European policies are influenced by the individual priorities of member countries. A priori, rare diseases are on the agenda of the...
Pre-program of the Annual Scientific Conference
The Rare Diseases Foundation invites you to meet on May 31, 2022 at the Collège de France for a day of scientific exchanges around the...
Second edition of the P2M International Symposium
Precision Medicine - a new approach to more proactive and individualized health care. It is in this spirit of possibility...
Flière TETECOU - The "Mots de têtes" podcast
On the occasion of its 3rd 'Research and Innovation' Day, this Friday, March 11, the Filière de Santé Maladies Rares des malformations de la tête, du...
International Summer School 2022: Rare Disease Registries and FAIRification of Data
As part of the training activities proposed by EJP RD, the International Summer School on Rare Disease Registries and FAIRification of Data is...
Training for patient representatives and advocates on leadership and communication skills
As part of the training activities proposed by EJP RD, an international course entitled "Training for patient representatives and advocates on...
FAIRopoly
The FAIRopoly has been launched on the EJP RD website. FAIRopoly illustrates the FAIRification steps followed by the ERNs registries to make their...