NEWS AND EVENTS
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Plateforme maladies rares press conference on the occasion of International Rare Disease Day 2024
On the occasion of International Rare Diseases Day 2024, the Plateforme Maladies Rares held a press conference. A highlight that...
Winners of the 2023 "Innovative Therapeutic Proofs of Concept in Rare Diseases" Call for Projects
The winners of the "Innovative Proofs of Concept for Rare Diseases" call for projects launched by the AFM-Téléthon and the Fondation...
MANY THANKS TO THE ANYSETIERS
The International Order of Anysetiers renews its support for the Foundation for Rare Disease Research As 2023 draws to a close, the...
The Fondation Maladies Rares and Novo Nordisk Announce the Winner of the 2023 Research Grant for Improving the Quality of Life of Patients with Sickle Cell Disease "
The Fondation Maladies Rares, in partnership with Novo Nordisk, is proud to announce the winner of the research grant "Amélioration de la...
Overview of RARE 2023 meetings
Rencontres RARE is a central event for the rare disease community, bringing together doctors, scientists, patients, public decision-makers,...
L'Épopée des Coureurs Solidaires: Many thanks for the Grand Raid 2023
🏃♀️🏃♂️ A big thank you to our runners who supported this year's Grand Raid! 🏃♀️🏃♂️ We would like to express our deepest gratitude...
Our winners of the "Translational Research" call for projects
The Fondation Maladies Rares is pleased to unveil the results of its 2023 call for "Translational Research" projects, as part of...
Bibs for the Paris 2024 Half Marathon
💙 Solidarity bibs for the Paris 2024 Half Marathon are now available, marking a major event to come in the...
The MOOC "Translational Research" is now open!
From today until December 2, mentors and educators specializing in the field will be available online to answer...
Announcing the winners of the D-IA-GNO-DENT data challenge!
Over the past three months, data enthusiasts, AI aficionados and healthcare innovators have joined hands...
Rare diseases: the contribution of human and social science research" book
We are delighted to announce the publication of a book born of the desire to promote and highlight the results of the work of...
ASGCT & Pfizer Awards for Medical Education
We are proud to announce that the Rare Diseases Foundation has been honored with the prestigious ASGCT & Pfizer Award for Medical Education! 🌟...

