A look back at the Nancy/Reims Regional Scientific Symposium on Rare Disease Research!

March 18, 2024 | News

We would like to thank all those who took part in the Colloque Scientifique Recherche Maladies Rares 2024, held on Friday March 15 in the Gabriel Faivre amphitheatre, Institut Lorrain du Coeur et des Vaisseaux, Bâtiment Louis Mathieu, CHRU de Nancy - Brabois.

This event, co-organized by the Fondation Maladies Rares, the LARA (Lorraine Affections Rares) | CHRU de Nancy and the CHRU de Nancy, was a real success thanks to the presence of 60 participants, including 14 brilliant speakers, as well as the presentation of 6 posters highlighting the latest advances in the field of rare diseases.

We would like to thank all our speakers for their inspiring presentations and valuable contributions, which enriched discussions around research, innovation and emerging therapies for rare diseases.

The day was marked by stimulating exchanges, enriching encounters and promising collaborations between regional players involved in the fight against rare diseases.

We are convinced that the links forged during this event will strengthen over time, nurturing our shared commitment to advancing research and improving care for patients suffering from rare diseases.

Finally, a huge thank you to our partner, Alnylam Pharmaceuticals, whose invaluable support made this event possible and contributed to its success.