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An active molecule identified in baker's yeast!
BPAN is a rare and untreatable disease caused by mutations in the WDR45 gene (coding for the WIPI4 protein) ....
Result of the APEHDia* call for proposals in partnership with the Foundation For Rare Diseases
In September 2019, the APEHDia association launched its 1st call for research projects in partnership with the Rare Diseases Foundation. At the end of the...
Regional scientific symposium in Strasbourg of the Foundation For Rare Diseases
As part of the International Rare Diseases Day, the Rare Diseases Foundation is organizing a regional scientific symposium on "Research into rare diseases...
8th call for research projects in SHS
The Rare Diseases Foundation launches its new call for research projects in the human and social sciences in the field of rare diseases,
AFMBD call for research projects " BD Therapy
Blackfan-Diamond anemia is a rare ribosomal disease characterized by an inability to produce red blood cells. Patients and...
Orphanet booklet: Living with a rare disease in France
The Orphanet booklet "Living with a rare disease in France - aids and benefits" is online here. This booklet aims at guiding people living with a rare disease...
RARE Meetings 2019
To relive the intense exchanges of the two days of the RARE Meetings, find online: - the videos of the sessions, - the presentations...
Edition #2 of the e-health & rare diseases co-design workshop
The Rare Diseases Foundation, with the support of the French Society of Digital Health and in collaboration with Yncréa Hauts-de-France and the Chair...
Call for papers for the Foundation's scientific symposium
The Rare Diseases Foundation is pleased to invite you to its scientific symposium "Issues and Challenges of Research in Rare Diseases" which will take place in...
Call for research projects HPN France
The HPN France association launches its 2020 call for projects to support basic and clinical research on hemoglobinuria...
New partnership with the search engine LILO
You can now support the Foundation for free just with your clicks! The Rare Diseases Foundation is honored to join the community...
Call for SHS projects - EJP RD
The Rare Diseases Foundation, partner of the European Joint Program for Rare Diseases EJP RD, is pleased to announce the opening of a...