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RARE Meetings 2019: Special Edition
Discover the Special Edition of the 2019 RARE Meetings published by Pharmaceutiques, special issue of February 2020 directed by Fabien Nizon. This...
Tele ALS Project: an incentive grant from the IRCEM Group Corporate Foundation
On Friday, March 6th, Marie-Christine OSTUNI of the IRCEM Group's Corporate Foundation handed over the incentive grant for the TéléSLA Project to the...
What is the EJP RD program?
Watch a video to understand everything about the EJP RD program in which the Rare Diseases Foundation is a partner, by clicking here
ComPaRe: call for patient participation
ComPaRe launches a call for participation of patients followed for rare diseases in order to accelerate medical research via its platform...
SHS/ MGEFI study: Couples and Huntington's disease
The MGEFI (Mutuelle Générale de l'Economie et des Finances) is once again a partner of the Foundation For Rare Diseases by financing the winning project of the...
Press Conference - International Rare Disease Day
The 13th edition of "Rare Disease Day" will take place on Saturday, February 29, 2020. The different entities of the Rare Diseases Platform have organized an event to celebrate the...
Conference: RNA INTERFERENCE: FROM DISCOVERY TO DRUG.
Meet Professor Philip A. Sharp during the Conference at the Collège de France, on March 26, 2020 at 4 pm : RNA INTERFERENCE, FROM DISCOVERY...
An active molecule identified in baker's yeast!
BPAN is a rare and untreatable disease caused by mutations in the WDR45 gene (coding for the WIPI4 protein) ....
Result of the APEHDia* call for proposals in partnership with the Foundation For Rare Diseases
In September 2019, the APEHDia association launched its 1st call for research projects in partnership with the Rare Diseases Foundation. At the end of the...
Regional scientific symposium in Strasbourg of the Foundation For Rare Diseases
As part of the International Rare Diseases Day, the Rare Diseases Foundation is organizing a regional scientific symposium on "Research into rare diseases...
8th call for research projects in SHS
The Rare Diseases Foundation launches its new call for research projects in the human and social sciences in the field of rare diseases,
AFMBD call for research projects " BD Therapy
Blackfan-Diamond anemia is a rare ribosomal disease characterized by an inability to produce red blood cells. Patients and...