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SHS/ MGEFI study: Couples and Huntington's disease
The MGEFI (Mutuelle Générale de l'Economie et des Finances) is once again a partner of the Foundation For Rare Diseases by financing the winning project of the...
Press Conference - International Rare Disease Day
The 13th edition of "Rare Disease Day" will take place on Saturday, February 29, 2020. The different entities of the Rare Diseases Platform have organized an event to celebrate the...
Conference: RNA INTERFERENCE: FROM DISCOVERY TO DRUG.
Meet Professor Philip A. Sharp during the Conference at the Collège de France, on March 26, 2020 at 4 pm : RNA INTERFERENCE, FROM DISCOVERY...
An active molecule identified in baker's yeast!
BPAN is a rare and untreatable disease caused by mutations in the WDR45 gene (coding for the WIPI4 protein) ....
Result of the APEHDia* call for proposals in partnership with the Foundation For Rare Diseases
In September 2019, the APEHDia association launched its 1st call for research projects in partnership with the Rare Diseases Foundation. At the end of the...
Regional scientific symposium in Strasbourg of the Foundation For Rare Diseases
As part of the International Rare Diseases Day, the Rare Diseases Foundation is organizing a regional scientific symposium on "Research into rare diseases...
8th call for research projects in SHS
The Rare Diseases Foundation launches its new call for research projects in the human and social sciences in the field of rare diseases,
AFMBD call for research projects " BD Therapy
Blackfan-Diamond anemia is a rare ribosomal disease characterized by an inability to produce red blood cells. Patients and...
Orphanet booklet: Living with a rare disease in France
The Orphanet booklet "Living with a rare disease in France - aids and benefits" is online here. This booklet aims at guiding people living with a rare disease...
RARE Meetings 2019
To relive the intense exchanges of the two days of the RARE Meetings, find online: - the videos of the sessions, - the presentations...
Edition #2 of the e-health & rare diseases co-design workshop
The Rare Diseases Foundation, with the support of the French Society of Digital Health and in collaboration with Yncréa Hauts-de-France and the Chair...
Call for papers for the Foundation's scientific symposium
The Rare Diseases Foundation is pleased to invite you to its scientific symposium "Issues and Challenges of Research in Rare Diseases" which will take place in...