NEWS AND EVENTS
Blog
Launch of the 2020 TELETHON!
Join us on September 12, from 11:30 a.m. to 12:30 p.m. to follow the launch of the 2020 Telethon live online, Un Téléthon #TropFort!
Filnemus: Postponement of the 24th Neuromuscular Days Congress
In view of the current health conditions, the 24th Neuromuscular Days Congress on October 7 and 8, 2020 has been postponed to a later date,...
New call for projects "GenOmics: high throughput sequencing & rare diseases
The Rare Diseases Foundation is pleased to announce the launch of its call for research projects 'GenOmics: high throughput sequencing &...
The Hauts-de-France region supports our co-design workshop
The Foundation For Rare Diseases is honored to receive support and the INS'pir label from the Hauts-de-France region for its workshop on...
Our 2019 activity report is online!
In this report, you will find a description of the Foundation's main missions and the results obtained, the projects supported in 2019, its...
Joint research call HPN France / FMR
The HPN France association is launching a new call for projects in 2020 to support basic and clinical research on hemoglobinuria...
5 projects selected for the Co-design Workshop 20
We congratulate the 5 emerging e-health projects selected for support at the second "e-health & disease co-design workshop".
Partner : Christian Nicoli's testimony
Testimony of Christian Nicoli, CEO of Hospimedia Groupe to present the internal challenge launched in April 2019 to benefit the...
5th TETECOU Day
Registration is now open for the 5th TETECOU Day, on Friday, October 2nd at the Imagine Institute (Paris)! This annual meeting will take place...
Call for projects Fanconi - AFMF
The French Fanconi Disease Association (AFMF) is launching its 3rd call for projects (AAP) aiming to support between 1 and 3 research topics on the...
Call for projects for the Bioentrepreneurs program
The Imagine Institute of Genetic Diseases is launching a call for projects for the Bioentrepreneurs program, open to scientific teams from its...
The replay of the Foundation's scientific symposium
Our symposium "Issues and Challenges in Rare Disease Research - Understanding to Develop Treatments" has ended. You can now...