NEWS AND EVENTS
Blog
The e-posters of the Western Regional Conference are online
Consult without waiting the e-posters already on line here of the inter-regional West colloquium which will take place next Friday, April 9th organized by...
EJP RD MOOC#1: Diagnosing Rare Diseases: from the Clinic to Research and back
The European Joint Programme on Rare Diseases (EJP RD) is developing a series of MOOCs (Massive Open Course on Rare Diseases).
Call for projects "Henri Chaigneau" of the French Hemophilia Association
The French Hemophilia Association (AFH) is launching the "Henri Chaigneau" call for projects in 2021 to support research into the...
Prof. Julien Nizard, winner of the joint AAP Algodystrophie France - Foundation For Rare Diseases
Within the framework of the AAP launched in 2020 on the Complex Regional Pain Syndrome (CRPS), the association Algodystrophie France has selected, with the...
Inter-regional scientific symposium West
The Rare Diseases Foundation organizes in association with the Groupement de Coopération Sanitaire des Hôpitaux Universitaires du Grand Ouest (GCS...
March 18 - Hypergrowth Syndrome Webinar
The association "Section Française de Chirurgie Plastique Pédiatrique de l'Enfant" organizes a digital conference on the syndromes...
Webinar 'Drug Repositioning and Public Private Partnership
On April 6, 2021, a webinar 'Drug Repositioning and Public-Private Partnerships: Such a Long Way to the Patient?
Charity event - Trainhard
We warmly thank all the e-gamers who participated in the charity event organized by Trainhard Esport on Twich. This event was...
Call for proposals: the Ring 14 or chromosome 14 related syndromes
Ring14 International yearly solicit international research projects focused on the Ring 14 or chromosome 14 related syndromes. The projects can be...
First edition of call for proposals - Angelini for Future 2021
Angelini Pharma is an international group, leader in health care and well-being, committed to help patients, doctors and caregivers in the fight...
Conference: Rare 2030
The Rare 2030 conference was held online on February 23, 2021, co-organized by European Parliament members Frédérique Ries (Belgium) and...
Online Conference - 24 Hours of Rare
This is a virtual event that will take place from February 27 to March 5, 2021, celebrating the global rare disease community with content...