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Our latest winners – Second semester 2025
Calls for thematic projects 2025: Omics 2025 Alain HOVNANIAN – Imagine Institute for Genetic Diseases, Paris – "Resolving undiagnosed rare...
RARE Meetings 2025: A Major Event for Rare Diseases
On October 7 and 8, 2025, the Cité Internationale Universitaire de Paris hosted the latest edition of Rencontres RARE. This biannual event...
Bordeaux "Research & Rare Diseases" Symposium: a fruitful dialogue between clinical practice, human sciences, and innovative therapies
On September 30, 2025, the IMS in Pessac hosted the "Research & Rare Diseases" symposium, organized around a full day of...
The Fondation Maladies Rares at the Grand Raid 2025!
Once again this year, the Fondation Maladies Rares was fortunate enough to be represented, by its director who was present on site, at one of the world's...
FE-IRCEM, a committed partner at our side
The IRCEM Group's Corporate Foundation (FE-IRCEM) held its last Board meeting in a friendly but resolutely committed atmosphere...
The Lycée Joffre ran for research into rare diseases!
The Lycée Joffre in Montpellier played host to a race like no other, in an atmosphere as festive as it was committed. For an entire...
Adidas 10K Paris: a committed stride in the heart of Paris
On Sunday June 8, 2025, the streets of Paris resounded to the rhythm of the Adidas 10K Paris, an iconic urban race that brought together thousands of...
Paris on the march for hope: the story of the 2025 Paris Marathon
On Sunday April 13, 2025, the streets of Paris vibrated with the footsteps of thousands of runners, united by the same challenge: crossing the line...
Our latest winners - 2nd quarter 2025
Calls for projects in partnership: Research prize with argenx Dr Rozen Le Panse - (Centre de Recherche en Myologie, Paris) - "Blocking...
When dogs shed light on rare human diseases
What if man's best friend could also become a valuable ally in research into rare diseases? That's the challenge taken up by the "...
A look back at our scientific symposium 2025 - Towards new paths for rare diseases
On May 15, 2025, at the heart of the Cordeliers campus in Paris, a new edition of the Fondation Maladies Rares scientific symposium was held....
OUR BEAUTIFUL STORIES: Better understanding for better support - a testimonial from the Nail-Patella Syndrome Association
At the Fondation Maladies Rares, we firmly believe that research in the Humanities and Social Sciences (HSS) plays an essential role in improving...