News - Foundation For Rare Diseases

First edition of call for proposals - Angelini for Future 2021

March 4, 2021

Angelini Pharma is an international group, leader in health care and well-being, committed to help patients, doctors and caregivers in the fight...

Conference: Rare 2030

February 23, 2021

The Rare 2030 conference was held online on February 23, 2021, co-organized by European Parliament members Frédérique Ries (Belgium) and...

Online Conference - 24 Hours of Rare

February 22, 2021

This is a virtual event that will take place from February 27 to March 5, 2021, celebrating the global rare disease community with content...

Press conference for the JIMR

February 15, 2021

Tuesday, February 16 at 9:30 a.m. - Press videoconference "Rare diseases and COVID19: an effective French model" COVID19 is a "double punishment"...

Hypergrowth syndromes: webinar on March 18

February 14, 2021

March 18, 2021, SFCPP is hosting a digital conference on hypergrowth syndromes in children on March 18, 2021 in partnership with the...

Prof. Daniel Scherman, elected Corresponding Member of the National Academy of Pharmacy

February 14, 2021

Prof. Daniel Scherman, Director of the Foundation For Rare Diseases, has been elected Corresponding Member of the French National Academy of Pharmacy, for his...

Les Cahiers d'Orphanet - Living with a rare disease in France

February 12, 2021

Les Cahiers d'Orphanet, Health Policy Series, December 2020 Living with a rare disease in France - Aids and benefits

The Credit Mutuel Ile de France, new partner of the Foundation

February 11, 2021

We are very pleased to announce the signing of a new partnership between the Crédit Mutuel Île-de-France and the Foundation For Rare Diseases...

The CIC North West's "Les Lauréats du cœur" operation

February 9, 2021

On February 9, 2021, as part of its operation "Les Lauréats du coeur"', the CIC Nord-Ouest presented a check for 21,000 euros to Dr....

International Workshop on Fragile X and Associated Diseases

February 4, 2021

On March 18 - 19, 2021, the Association Fragile X France, on the occasion of its thirtieth anniversary, is organizing an international workshop on the syndrome...