Blog

This Friday, October 15, during the RARE 2021 Congress, Laurence Tiennot-Herment, President of the AFM-Telethon, announced the launch of a...

The Foundation For Rare Diseases and the association AMMi have jointly launched a call for projects on the MTFMT gene and Leigh syndrome. Two projects...

The RHU-COSY is a joint initiative of 11 partners, which includes 2 hospitals (Necker - Enfants Malades AP HP and Hôpital Mère Enfant HCL), 6...

To access the Congress, click on the link of the platform: https://www.ivmhealth.com/rencontresrare.html Enter the Congress and...

Our Association HPN France - Medullary Aplasia, created in 2004, raises funds to support research on Paroxysmal Hemoglobinuria...

The Commanderies of the International Order of Anysetiers, true service clubs, bring together men and women to exchange and together...

Lydia supports the Rare Diseases Foundation! You can now support the Foundation's activities in a few clicks directly from your computer.

The new session of the MOOC* "Diagnosing Rare Diseases: from the Clinic to Research and back" starts today. Registration is now open!...

From October 4 to 8, come to the lab for an exceptional science festival. Thanks to you, nearly 1000 experts, supported by the AFM-Telethon, will be present...

In June 2015, during the New Health/ APHP Hackathon, which was held at the Pitié Salpêtrière hospital, the idea of an application for the...

The 2021 Fall University will be held from October 20 to 23, both in person and remotely. A privileged moment of...