NEWS AND EVENTS
Blog
Opening of the RARE congress platform
To access the Congress, click on the link of the platform: https://www.ivmhealth.com/rencontresrare.html Enter the Congress and...
Testimony of the HPN-AM Association
Our Association HPN France - Medullary Aplasia, created in 2004, raises funds to support research on Paroxysmal Hemoglobinuria...
International Order of Anysetiers of TULLE - VAL de CORREZE
The Commanderies of the International Order of Anysetiers, true service clubs, bring together men and women to exchange and together...
Lydia supports the Foundation!
Lydia supports the Rare Diseases Foundation! You can now support the Foundation's activities in a few clicks directly from your computer.
Launch of the new MOOC#1 session, EJP-RD
The new session of the MOOC* "Diagnosing Rare Diseases: from the Clinic to Research and back" starts today. Registration is now open!...
AFM-Telethon's Fête de la Science 21
From October 4 to 8, come to the lab for an exceptional science festival. Thanks to you, nearly 1000 experts, supported by the AFM-Telethon, will be present...
Mobile application Poop & Pee _ Neurosphinx
In June 2015, during the New Health/ APHP Hackathon, which was held at the Pitié Salpêtrière hospital, the idea of an application for the...
The Autumn Universities 2021 of the MR Alliance
The 2021 Fall University will be held from October 20 to 23, both in person and remotely. A privileged moment of...
Apply for the "Rare Diseases and Pain" Award
The APICIL Foundation has joined forces with the Foundation For Rare Diseases to reward an innovative project in the field of rare diseases and health...
Rare diseases" session at the National Academy of Pharmacy
We invite you to attend the thematic session "Rare Diseases" Wednesday, September 29, 2021, 2:00 pm to 5:00 pm. The objective is to take stock of...
The RARE 2021 Conference program
Supported by the Foundation For Rare Diseases, this 7th edition of the Rencontres RARE congress will be virtual and will bring together over two days,...
The EJP Rare Diseases ERN
The European Joint Programme on Rare Diseases has launched the ERN Research Training Workshops funding opportunity. The goal of the workshops is to...