Blog

Daniel Scherman, director of the Rare Diseases Foundation, has been elected to the National Academy of Pharmacy for his work on Rare Diseases. He is...

The Foundation is a partner in the RHU-COSY (Cure Overgrowth Syndromes), a 5-year project financed by the French National Research Agency as part of the...

Through its Open Academy, EURORDIS aims to educate patients and patient representatives by providing them with the knowledge necessary to...

On Friday, October 15, during the RARE 2021 Congress, Laurence Tiennot-Herment, President of AFM-Telethon, announced the launch of a call for...

The Foundation and HPN-AM France support research projects in Health or Human and Social Sciences on paroxysmal hemoglobinuria...

Following the successful implementation of three Joint Transnational Calls since 2019, EJP RD is glad to announce the upcoming launch on December...

We are very proud to present you the list of the 26 runners of our 2022 Ultra Trail du Mont Blanc - UTMB solidarity team.

The Rare Diseases Foundation, with the participation and support of Sanofi Genzyme, presents a podcast on the stages of development of a new drug.

Banque Transatlantique regularly gives a voice to committed philanthropists on its website. Read the interview...

🚨 **Urgent** The #Telethon2021, continues! With nearly 74 million euros on the counter at the end of the show, this 35th Telethon has highlighted a...