Blog

The Rare Diseases Foundation, with the participation and support of Sanofi Genzyme, invites you to follow the TAmDeM podcast "Training of...

PODCAST TAMDEM : Training of Academics on Drug Development A podcast presented by the Rare Diseases Foundation with the...

The Foundation For Rare Diseases is recruiting a communication and fundraising officer on a sandwich course! The position is available immediately. More...

In the context of EJP RD's ERN Workshops, an in-person workshop titled "Trans-ERN Working Group for Spina Bifida (Spinal Dysraphism): Workshop for...

Daniel Scherman, director of the Rare Diseases Foundation, has been elected to the National Academy of Pharmacy for his work on Rare Diseases. He is...

The Foundation is a partner in the RHU-COSY (Cure Overgrowth Syndromes), a 5-year project financed by the French National Research Agency as part of the...

Through its Open Academy, EURORDIS aims to educate patients and patient representatives by providing them with the knowledge necessary to...

On Friday, October 15, during the RARE 2021 Congress, Laurence Tiennot-Herment, President of AFM-Telethon, announced the launch of a call for...

The Foundation and HPN-AM France support research projects in Health or Human and Social Sciences on paroxysmal hemoglobinuria...

Following the successful implementation of three Joint Transnational Calls since 2019, EJP RD is glad to announce the upcoming launch on December...