Through its Open Academy, EURORDIS aims to educate patients and patient representatives by providing them with the knowledge they need to contribute in the most optimal way to discussions on healthcare, research and new drug development.
New online courses are available on the following topics
- Registries: how can you work with existing registries or set up a registry?
- Establishing an international cooperation
- International advocacy for rare diseases
- Introduction to the European and international research landscape
For more information: https: //openacademy.eurordis.org/