EJP-RD is a multifaceted program aimed at supporting Rare Disease (RD) research in every possible way. This include funding of primary research, networking and training capacities as well as the development and application of tools and methodologies facilitating the generation, analysis, and dissemination of data all the way from genetic/translational research to clinical trials.
French Foundation for Rare Diseases is coordinating a Work Package that aims to develop a streamlined academic course on RD research that will be multidisciplinary and fully available online.
To better address the course development and avoid any duplication, we would like to explore the needs of a huge group of learners (academic or medical students, young researchers, patients’ organisations, …) and list all existing online training initiatives or projects already developed.
To that end, we have designed a single comprehensive online survey that we are delighted to invite you and your coworkers to complete.