A sports challenge for the International Rare Diseases Day

This event has already taken place, but you can still consult some information.

The Foundation For Rare Diseases invites you to take part in International Rare Disease Day to support the 3 million people affected in France by running one or more kms, on Sunday, February 28, 2021 (in compliance with applicable health regulations

A distance objective: to cover 7,000 kms together for the 7,000 rare diseases.
Run, walk, cycle... alone, with family or friends, get your sneakers on.

Together, we're stronger!

Rules for this sporting solidarity challenge

Article 1: Purpose of this challenge

As part of International Rare Disease Day on Sunday, February 28, 2021, it will be proposed to run so-called solidarity kilometers. The aim will be to cover 7,000 kms in recognition of the 7,000 rare diseases. This is a collective distance objective for which all the kilometers covered by participants will be added up to support the 3 million people in France affected by a rare disease. Participants are free to choose how they wish to cover their kilometers (on foot, by bike, etc.). No kilometers will be counted if covered by a motorized vehicle (excluding wheelchairs).

Article 2: Eligibility and free entry

The operation is open to all, women, men and children accompanied by an adult.

This race is voluntary and must not conflict with participants' medical prescriptions. No medical certificate is required. However, participants undertake to be in good physical condition for walking, running or cycling, and not to suffer from, or have symptoms of, Covid 19.

The activity can take place either on its own, or if government directives in force at the time of the event allow, in small groups, in compliance with applicable distance and health regulations.

The use of bicycles and other wheeled equipment is permitted, and the Highway Code applies equally to all users. To ensure your safety, please make yourself visible at all times.

 The Solidarity Run is entirely free of charge and requires no donation.

Article 3: Date of the challenge

The operation will take place on Sunday, February 28, 2021.

Article 4: Registration

Registration is not compulsory. A solidarity bib can be downloaded. Participants are free to wear it or not during their outing.

Article 5: Cancellation

The Foundation reserves the right to cancel the Virtual Solidarity Race in the event of force majeure as defined in article 1218 of the French Civil Code.

Article 6: Liability

The virtual solidarity race is not a competition. Participation is by definition free. Consequently, participants complete the race under their own responsibility. The Foundation declines all responsibility for any damage whatsoever.

Article 7: Protection of personal data

The General Data Protection Regulation (GDPR), in force since May 25, 2018, requires concise, transparent, comprehensible and easily accessible information for data subjects. This transparency obligation is defined in Articles 12, 13 and 14 of the RGPD. All such data is collected for specified, explicit and legitimate purposes and will not be further processed in a manner incompatible with those purposes.

In accordance with the French Data Protection Act no. 78-17 of January 6, 1978, you have the right to access and rectify information concerning you. The organizers undertake to respect the confidentiality of nominative information and personal data communicated by the user and to process them in compliance with the French Data Protection Act of 6/01/1978. The information collected from participants will be recorded and used for communications related to the operation.

Article 8: Image rights

Under article 9 of the French Civil Code, everyone has the right to privacy. However, participants authorize the organizers, partners and the media to use still or audiovisual images in which they may appear and which are taken during their participation in the event, without financial consideration, on all media and for a reasonable length of time necessary for the smooth running of the operation.

Article 9: Transmission of results

The participant declares and transmits his 7000 kms results by means of a photograph. The latter can be transmitted by any means on the facebook page dedicated to the event.