Rencontres RARE has become a key event for all those involved in the rare disease community: public decision-makers, patient and caregiver representatives, healthcare and research professionals, and pharmaceutical, medical device and healthcare technology companies.
Held every two years, the congress provides a forum for reflection, focusing in particular on research into all aspects of the patient journey (diagnosis, development of therapeutic solutions, organizational and social innovations, etc.).
Let's hope that the Rencontres RARE 2025 will once again be a great laboratory of ideas and analysis, helping us to move towards a fairer, more efficient healthcare system, offering patients and their families prospects for treatment and sources of hope.
We invite you to make a date to join us at the Cité Universitaire Internationale in Paris on October 7 and 8, 2025, to contribute your visions, your ideas, your solutions and build the future of rare disease research together.
Program and Registration on the event website: rareparis.com