The Foundation For Rare Diseases has organized a scientific symposium "Advancing research in rare diseases", on May 7, 2019 at the Collège de France, Paris 5th.
She was delighted to welcome Philippe Berta, Member of Parliament for the Gard region, geneticist and Chairman of the French National Assembly's study group on rare diseases, to open the day's proceedings.
The aim of the symposium was to present the results of the winning projects, exchange best practices and share experiences, encourage meetings between players, and encourage the emergence of new research projects.
To discover the program, click here
Videos of speeches online :
- Jean-Louis Mandel
- Nathalie Cartier
- Philippe Berta
- Amélie Piton
- Claire Francastel
- Laure-Emmanuelle Zaragosi
- Alexandre Bacq
- Arthur Sorlin
- Aline Chassagne
- Laura Guerin
- Grégoire Michaux
- Laurent David
- Emmanuelle Génin
- Roseline Favresse
- Audrey Arfi
- Round Table 1 "E-health: what opportunities for rare diseases, from diagnosis to medical treatment?"
- Yann Hérault
- Thomas Falguières
- Jean-Luc Galzi and Marie-Louise Jung
- Pierre Cattan
- Round Table 2: "Molecule repositioning: an opportunity for rare diseases and pharmaceutical companies?