Blog

Our director Daniel Scherman was honored to contribute to the "Family Health Focus" podcast series from our loyal partner the Foundation...

The Association for Research on Multisystematic Atrophy (Aramise) and the Foundation for Rare Diseases (FMR) have agreed on a partnership...

After many months of work, we are pleased to announce the launch of the "Digital tools 4 Rare Diseases (DT4RD)" project. A product of...

The association of the Doctoral students and Doctors of Biology of Bordeaux (2D2B) and the platform of digital health Sci-dip allied themselves to publish a...

February 9, 2022, 6:00 pm, webinar "News on Covid vaccination & Rare Diseases" - Pr Alain Fischer Connection link on the website...

https://youtu.be/XN2oxmQJQZ4La Fondation Maladies Rares a 10 ans ! Mesure phare de l’axe “Recherche” du 2ème Plan National Maladies Rares 2011-2014,...

The CARE 2022 conference of the Rare Disease Alliance is an event that aims to bring together all rare disease stakeholders to discuss the...

As part of the training activities proposed by EJP RD, an online training course on "Training on strategies to foster solutions of undiagnosed rare...

The European Joint Programme on Rare Diseases (EJP RD) is proud to announce a collaboration with the Critical Path Institute (C-Path) to advance...

Pierre Fabre and the EspeRare Foundation are launching EDELIFE, a clinical trial of a prenatal treatment for ectodermal dysplasia...

The Therapies Scientific Committee (TSC) of the International Rare Diseases Research Consortium (IRDiRC) is establishing a Task Force to...

IRDiRC's Therapies Scientific Committee (TSC) is establishing a Task Force on Drug Repurposing Guidebook aimed at helping developers identify...