Blog

February 9, 2022, 6:00 pm, webinar "News on Covid vaccination & Rare Diseases" - Pr Alain Fischer Connection link on the website...

https://youtu.be/XN2oxmQJQZ4La Fondation Maladies Rares a 10 ans ! Mesure phare de l’axe “Recherche” du 2ème Plan National Maladies Rares 2011-2014,...

The CARE 2022 conference of the Rare Disease Alliance is an event that aims to bring together all rare disease stakeholders to discuss the...

As part of the training activities proposed by EJP RD, an online training course on "Training on strategies to foster solutions of undiagnosed rare...

The European Joint Programme on Rare Diseases (EJP RD) is proud to announce a collaboration with the Critical Path Institute (C-Path) to advance...

Pierre Fabre and the EspeRare Foundation are launching EDELIFE, a clinical trial of a prenatal treatment for ectodermal dysplasia...

The Therapies Scientific Committee (TSC) of the International Rare Diseases Research Consortium (IRDiRC) is establishing a Task Force to...

IRDiRC's Therapies Scientific Committee (TSC) is establishing a Task Force on Drug Repurposing Guidebook aimed at helping developers identify...

The organization of the Grand Raid de la Réunion renews for the 4th consecutive year its support to the Foundation For Rare Diseases ! How to book...

The Foundation is a partner in the RHU-COSY (Cure Overgrowth Syndromes), a 5-year project financed by the French National Research Agency as part of the...

As part of its Open Academy site, EURORDIS has just launched its Establishing an international cooperation course, which will enable students to...

Is science the obvious choice? For the progress of health and society This is the conclusion of the online conference organized by...