Blog

On the occasion of Rare Disease Day 2022 (February 28th), the International Rare Diseases Research Consortium (IRDiRC) has released an introductory...

The next Research and Innovation Day of the Filière de Santé Maladies Rares des malformations de la tête, du cou et des dents (TETECOU)...

The symposium "ALS & Motor Neurone Diseases: what avenues for the future?" organized by france biotech will take place on March 17, 2010.

To commemorate Rare Disease Day (February 28th), the European Joint Programme on Rare Diseases (EJP RD) is proud to announce the launch of their...

Our director Daniel Scherman was honored to contribute to the "Family Health Focus" podcast series from our loyal partner the Foundation...

The Association for Research on Multisystematic Atrophy (Aramise) and the Foundation for Rare Diseases (FMR) have agreed on a partnership...

After many months of work, we are pleased to announce the launch of the "Digital tools 4 Rare Diseases (DT4RD)" project. A product of...

The association of the Doctoral students and Doctors of Biology of Bordeaux (2D2B) and the platform of digital health Sci-dip allied themselves to publish a...

February 9, 2022, 6:00 pm, webinar "News on Covid vaccination & Rare Diseases" - Pr Alain Fischer Connection link on the website...

https://youtu.be/XN2oxmQJQZ4La Fondation Maladies Rares a 10 ans ! Mesure phare de l’axe “Recherche” du 2ème Plan National Maladies Rares 2011-2014,...

The CARE 2022 conference of the Rare Disease Alliance is an event that aims to bring together all rare disease stakeholders to discuss the...

As part of the training activities proposed by EJP RD, an online training course on "Training on strategies to foster solutions of undiagnosed rare...