NEWS AND EVENTS
Blog
Joint AAP with ARAMISE on multisystematic atrophy
The Association for Research on Multisystematic Atrophy (Aramise) and the Foundation for Rare Diseases (FMR) have agreed on a partnership...
Digital Tools for Rare Disease project (DT4RD)
After many months of work, we are pleased to announce the launch of the "Digital tools 4 Rare Diseases (DT4RD)" project. A product of...
BPAN science popularization article
The association of the Doctoral students and Doctors of Biology of Bordeaux (2D2B) and the platform of digital health Sci-dip allied themselves to publish a...
Vaccination & Rare Diseases Webinar
February 9, 2022, 6:00 pm, webinar "News on Covid vaccination & Rare Diseases" - Pr Alain Fischer Connection link on the website...
The Foundation celebrates its 10th anniversary
https://youtu.be/XN2oxmQJQZ4La Fondation Maladies Rares a 10 ans ! Mesure phare de l’axe “Recherche” du 2ème Plan National Maladies Rares 2011-2014,...
CARE 15 of the Rare Disease Alliance
The CARE 2022 conference of the Rare Disease Alliance is an event that aims to bring together all rare disease stakeholders to discuss the...
New training activities proposed by RJP RD
As part of the training activities proposed by EJP RD, an online training course on "Training on strategies to foster solutions of undiagnosed rare...
EJP RD collaboration with the Critical Path Institute (C-Path)
The European Joint Programme on Rare Diseases (EJP RD) is proud to announce a collaboration with the Critical Path Institute (C-Path) to advance...
Clinical trial hypohidrotic ectodermal dysplasia
Pierre Fabre and the EspeRare Foundation are launching EDELIFE, a clinical trial of a prenatal treatment for ectodermal dysplasia...
New IRDiRC Task Force: PLUTO PROJECT
The Therapies Scientific Committee (TSC) of the International Rare Diseases Research Consortium (IRDiRC) is establishing a Task Force to...
New IRDiRC Task Force: Drug Repursposing GuideBook
IRDiRC's Therapies Scientific Committee (TSC) is establishing a Task Force on Drug Repurposing Guidebook aimed at helping developers identify...
🟠[Solidarity Bibs - Grand Raid]🟠
The organization of the Grand Raid de la Réunion renews for the 4th consecutive year its support to the Foundation For Rare Diseases ! How to book...