NEWS AND EVENTS
Blog
Research and Innovation" Day of the TETECOU Rare Diseases Health Network
The next Research and Innovation Day of the Filière de Santé Maladies Rares des malformations de la tête, du cou et des dents (TETECOU)...
ALS and motor neuron diseases: what avenues for tomorrow?
The symposium "ALS & Motor Neurone Diseases: what avenues for the future?" organized by france biotech will take place on March 17, 2010.
The European Joint Programme on Rare Diseases in now on Instagram
To commemorate Rare Disease Day (February 28th), the European Joint Programme on Rare Diseases (EJP RD) is proud to announce the launch of their...
Podcast "Rare Diseases" from the IRCEM Corporate Foundation
Our director Daniel Scherman was honored to contribute to the "Family Health Focus" podcast series from our loyal partner the Foundation...
Joint AAP with ARAMISE on multisystematic atrophy
The Association for Research on Multisystematic Atrophy (Aramise) and the Foundation for Rare Diseases (FMR) have agreed on a partnership...
Digital Tools for Rare Disease project (DT4RD)
After many months of work, we are pleased to announce the launch of the "Digital tools 4 Rare Diseases (DT4RD)" project. A product of...
BPAN science popularization article
The association of the Doctoral students and Doctors of Biology of Bordeaux (2D2B) and the platform of digital health Sci-dip allied themselves to publish a...
Vaccination & Rare Diseases Webinar
February 9, 2022, 6:00 pm, webinar "News on Covid vaccination & Rare Diseases" - Pr Alain Fischer Connection link on the website...
The Foundation celebrates its 10th anniversary
https://youtu.be/XN2oxmQJQZ4La Fondation Maladies Rares a 10 ans ! Mesure phare de l’axe “Recherche” du 2ème Plan National Maladies Rares 2011-2014,...
CARE 15 of the Rare Disease Alliance
The CARE 2022 conference of the Rare Disease Alliance is an event that aims to bring together all rare disease stakeholders to discuss the...
New training activities proposed by RJP RD
As part of the training activities proposed by EJP RD, an online training course on "Training on strategies to foster solutions of undiagnosed rare...
EJP RD collaboration with the Critical Path Institute (C-Path)
The European Joint Programme on Rare Diseases (EJP RD) is proud to announce a collaboration with the Critical Path Institute (C-Path) to advance...