Blog

The Reference Center for Congenital and Malformative Diseases of the Esophagus (CRACMO) celebrates its 10th anniversary at the Aeronef in Lille on Saturday 17 and...

The Rare Diseases Foundation is organizing its first symposium in the Humanities and Social Sciences, bringing together researchers, medical teams and...

Two personalities appointed to prepare the third National Plan for Rare Diseases After the announcement made by Marisol Touraine, Minister of Health and...

What are the challenges for a third National Plan for Rare Diseases? Colloquium organized by Coopération Santé, on Tuesday, October 4, 2016 at the Assembly...

The inaugural day of the French Stem Cell Society (FSSCR) will be held at the Pasteur Institute on November 7, 2016. You will find the...

AMSED-Genetics, the Association of patients of Ehlers-Danlos Syndromes, is organizing its second international congress on the syndromes...

Perinatal day "Genetic diagnosis in perinatal care: a look at the future" - September 23, 2016

A first day of information on the rare neurodegenerative disease: Progressive Supranuclear Palsy (also called "Steele's disease")...

The first European Hakathon dedicated to respiratory pathologies "RespirH@cktion" in partnership with the Rare Diseases Foundation will take place this...

Discovery of a new gene for congenital myasthenic syndrome (CMS)