Blog

We are happy to invite you to take part in a workshop addressing "Ethics and regulatory considerations for ERN Data Access Committee members". This...

Rare Diseases Foundation & Alnylam Pharmaceuticals Award At our Annual Scientific Symposium we presented the Research Award to Alnylam Pharmaceuticals.

Congratulations to our President Jean-Louis Mandel, winner of the Kavli 2022 Prize! The Norwegian Academy of Sciences and Letters announced on the 1st of...

RARE DISEASE AND PAIN PRIZE Foundation for Rare Diseases & APICIL Foundation On the occasion of our Annual Scientific Symposium we have decided to...

In order to support research on Cerebellar Ataxias, the Association Connaître les Syndromes Cérébelleux (C.S.C.) will allocate in 2022,...

The IUD dedicated to therapeutic trials in rare diseases is renewed in 2022-2023. The objective of this training program is to provide training for...

EJP RD is pleased to announce that the next edition of the 7th RE(ACT) Congress and 5th IRDiRC Conference will be held in person in Berlin,...

In the context of EJP RD's ERN Workshops, a face-to-face workshop entitled "Modelling & Simulation: Research Methodologies for Small Populations...

University Medical Centre Groningen (UMCG) and Fondazione Telethon (FTELE) along with other EJP RD partners are organizing an EJP RD Training...

In the framework of the European Joint Programme on Rare Diseases (EJP RD), the innovative call "Rare Diseases Research (RDR) Challenges" aims at...

EJP RD is glad to announce today (May 2nd) the opening of the call for Research Mobility Fellowships, which aims to support PhD students, postdocs...

Congenital aniridia and rare iris diseases are very disabling genetic conditions with a risk of blindness for which it is necessary to find a cure.