NEWS AND EVENTS
Blog
ERN Workshop - Rhabdoid tumors in clinic and research: From basic biology to the patient bed
In the context of EJP RD's ERN Workshops, a face-to-face workshop entitled "Rhabdoid tumors in clinic and research: From basic...
Groupama Foundation's 2023 Social Innovation Award
The Foundation has just launched its call for applications for the 2023 Social Innovation Award. With a prize of €20,000, this prize rewards each...
EJP RD Innovation Management Toolbox
EJP RD is delighted to announce the launch on June 30th, 2022 of the Innovation Management Toolbox (IMT), a free-to-use and...
Call for projects "Development of experimental models for rare diseases
The Rare Diseases Foundation launches its 2022 call for projects for the development of new experimental models for rare diseases. This call for...
EJP RD: Dissemination of EJP RD ERICA Workshop "Ethics and regulatory considerations for ERN Data Access Committee members
We are happy to invite you to take part in a workshop addressing "Ethics and regulatory considerations for ERN Data Access Committee members". This...
Winner 2022 Alnylam Award
Rare Diseases Foundation & Alnylam Pharmaceuticals Award At our Annual Scientific Symposium we presented the Research Award to Alnylam Pharmaceuticals.
Kavli 2022 Award
Congratulations to our President Jean-Louis Mandel, winner of the Kavli 2022 Prize! The Norwegian Academy of Sciences and Letters announced on the 1st of...
Winner of the 2022 "Rare Diseases and Pain" award
RARE DISEASE AND PAIN PRIZE Foundation for Rare Diseases & APICIL Foundation On the occasion of our Annual Scientific Symposium we have decided to...
Call for projects Cerebellar ataxias
In order to support research on Cerebellar Ataxias, the Association Connaître les Syndromes Cérébelleux (C.S.C.) will allocate in 2022,...
Inter-University Diploma in Rare Diseases
The IUD dedicated to therapeutic trials in rare diseases is renewed in 2022-2023. The objective of this training program is to provide training for...
7th RE(ACT) Congress and 5th IRDiRC Conference
EJP RD is pleased to announce that the next edition of the 7th RE(ACT) Congress and 5th IRDiRC Conference will be held in person in Berlin,...
EJP RD's ERN Workshops: "Modelling & Simulation: Research Methodologies for Small Populations in Rare Diseases
In the context of EJP RD's ERN Workshops, a face-to-face workshop entitled "Modelling & Simulation: Research Methodologies for Small Populations...