NEWS AND EVENTS
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EJP RD: Dissemination of EJP RD ERICA Workshop "Ethics and regulatory considerations for ERN Data Access Committee members
We are happy to invite you to take part in a workshop addressing "Ethics and regulatory considerations for ERN Data Access Committee members". This...
Winner 2022 Alnylam Award
Rare Diseases Foundation & Alnylam Pharmaceuticals Award At our Annual Scientific Symposium we presented the Research Award to Alnylam Pharmaceuticals.
Kavli 2022 Award
Congratulations to our President Jean-Louis Mandel, winner of the Kavli 2022 Prize! The Norwegian Academy of Sciences and Letters announced on the 1st of...
Winner of the 2022 "Rare Diseases and Pain" award
RARE DISEASE AND PAIN PRIZE Foundation for Rare Diseases & APICIL Foundation On the occasion of our Annual Scientific Symposium we have decided to...
Call for projects Cerebellar ataxias
In order to support research on Cerebellar Ataxias, the Association Connaître les Syndromes Cérébelleux (C.S.C.) will allocate in 2022,...
Inter-University Diploma in Rare Diseases
The IUD dedicated to therapeutic trials in rare diseases is renewed in 2022-2023. The objective of this training program is to provide training for...
7th RE(ACT) Congress and 5th IRDiRC Conference
EJP RD is pleased to announce that the next edition of the 7th RE(ACT) Congress and 5th IRDiRC Conference will be held in person in Berlin,...
EJP RD's ERN Workshops: "Modelling & Simulation: Research Methodologies for Small Populations in Rare Diseases
In the context of EJP RD's ERN Workshops, a face-to-face workshop entitled "Modelling & Simulation: Research Methodologies for Small Populations...
EJP RD training on Genetic biobanks for Rare Disease Research
University Medical Centre Groningen (UMCG) and Fondazione Telethon (FTELE) along with other EJP RD partners are organizing an EJP RD Training...
Rare Diseases Research (RDR) Challenges #4
In the framework of the European Joint Programme on Rare Diseases (EJP RD), the innovative call "Rare Diseases Research (RDR) Challenges" aims at...
Research Mobility Fellowship funding opportunity
EJP RD is glad to announce today (May 2nd) the opening of the call for Research Mobility Fellowships, which aims to support PhD students, postdocs...
Call for GÊNIRIS projects
Congenital aniridia and rare iris diseases are very disabling genetic conditions with a risk of blindness for which it is necessary to find a cure.