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Open consultation for the law of multiannual programming of research
On February 1st, the Prime Minister, Edouard Philippe, announced the setting up of working groups in order to create a programming law...
Call for Scientific Research Projects - Association Fragile X France
The National Fragile X Syndrome Association, Fragile X France, launches its first call for proposals to support clinical and preclinical research....
Seventh call for research projects "Humanities and social sciences & rare diseases
The Rare Diseases Foundation is launching its seventh call for research projects in the human and social sciences in the field of rare diseases,...
28-02 // International Rare Diseases Day
International Rare Disease Day is an international movement launched in 2008 by EURORDIS and the Council of National Alliances, the European Union's...
Article Le Monde - Pr Daniel Scherman, Director of the Rare Diseases Foundation
Today, for the International Rare Diseases Day, Le Monde dedicates its special report on rare diseases with a special focus on the...
New gene involved in Stormorken syndrome
Stormorken syndrome is a rare genetic disorder characterized by muscle weakness and conditions of the eye, skin, and...
AAP 'Development of experimental models of rare diseases'.
The Rare Diseases Foundation launches its new call for research projects 'Development of experimental models of rare diseases'.
Testimonials from our sponsors: Kiwanis
Gérard CONTE, President of the Kiwanis France Entraide Foundation (KFE) and Patrick MAUREL, in charge of the Rare Diseases project for the district...
Press Conference - International Rare Disease Day
The 6 entities of the Rare Diseases Platform are organizing a Press Conference on Tuesday, February 26, 2019, on the theme "Diagnosis and Screening...
FSHD International Research Congress on Facioscapulohumeral Dystrophy
The FSH Society's International FSHD Research Conference will be held on June 19-20, 2019 in Marseille, at the Palais du Pharo. In the presence of...
MILLION STEPS: running beyond our strengths for research on rare diseases
5 enthusiastic runners, decided to give a human and solidary dimension to their sporting dream "To run together the Grand Raid of La Rochelle".
First European congress on e-health and innovation in neuromuscular diseases
On March 22 and 23, 2019, will have the first European Congress on e-health and innovation in neuromuscular diseases, organized by the University Hospital of...