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Conference on Rare Diseases organized by the International Order of Anysetiers of the Commanderie des Landes
On September 1, 2019, the International Order of Anysetiers of the Landes Commandery will hold a Rare Disease Conference to...
Hopsimédia: a challenge to the km for the Foundation
Since April 1st, Hospimedia supports the Foundation For Rare Diseases. The "Hospi'Runners" accumulate the kilometers they run during their...
UTMB 2019 edition ends
The Foundation is one of the solidarity causes of the Ultra Trail du Mont Blanc. This year, 29 runners have chosen to wear a solidarity bib in order to support the...
Relabelling of rare disease health networks
The inter-channel booklet which presents the National Plans for Rare Diseases, the actors of rare diseases, and the 23 channels is updated. For...
Foundation releases 2018 activity report
In this report, you will find a description of the Foundation's main missions and the results it has achieved, as well as the projects it has supported in...
Discover our Scientific Council
Discover the portrait of Professor Francesc PALAU, member of our Scientific Council by clicking here.
Discover our Scientific Council
Discover the portrait of Professor Pierre Levy, member of our Scientific Council by clicking here.
PHILOMENE survey: help us by responding to this research program
The PHILOMENE research program aims to improve the educational outcomes and career choices of children with medical conditions...
Groupama Foundation - 2020 Social Innovation Award
The Groupama Foundation is launching its new call for projects for its 2020 Social Innovation Award. The deadline for submission of applications is 6 December...
Clinical research: an original video
The FAI2R pipeline produced an informational video in collaboration with the DéfiScience pipeline on pediatric research. The script was...
Symposium on the gene therapy revolution
The AFM-Telethon and the Health Chair of Sciences Po are organizing a symposium on September 17, 2019 at the National Assembly on the theme of "The revolution...
The Foundation's new GenOmics call for proposals
The Rare Diseases Foundation is launching its new call for projects "GenOmics: High-Throughput Sequencing" and is supporting a key step in the development of...