NEWS AND EVENTS
Blog
The joint IRDiRC-RE(ACT) Congress
The joint IRDiRC-RE(ACT) Congress will take place from 11 to 14 March 2020, in Berlin. The scientific program is based on the principles and achievements of the...
The Hospi'runners challenge
Hospimedia Groupe handed over a check of 4556 euros to the Foundation For Rare Diseases following their internal challenge launched last April. The employees...
Agatha and Aquarelle's "Bougie-Bracelet" operation
The companies Agatha and Aquarelle, with the support of the M6 group, presented a check for 18,000 euros to the Foundation For Rare Diseases following their...
Kiwanis Club Commits to Solidarity Theater Evening
The Kiwanis Club of Montpellier is organizing a theatrical evening on Saturday, November 23 at 8:30 p.m. in the Salle des Granges in Saint-Jean-de-Védas. An evening...
Special Feature: Developing a new treatment: a long journey
To help patients and families better understand the progress of research, the Foundation has co-written for the French association of the...
EJP: pre-announcement of the call for transnational projects 2020
To discover the pre-announcement of the 2020 transnational call for projects of the European Joint Programme on Rare Diseases, click here
Genetics, environment, signaling and synaptic plasticity in developmental brain diseases: from the laboratory to the clinic
The conference will cover the following topics: - Genetic and environmental causes of brain developmental disorders - Therapies...
EJP - Online Training: Results of the rare disease community's expectations
The Rare Diseases Foundation is a partner of the European Joint programme on Rare Diseases. This...
IPMC: From donation to discovery... and drugs!
The Rare Diseases Foundation will participate in the day organized by the Institute of Molecular and Cellular Pharmacology (IPMC) on November 15...
AAP Overcoming Cystic Fibrosis
Within the framework of its 2020 Call for Scientific Projects, Vaincre la Mucoviscidose wishes to support all areas of research: fundamental...
[D-3] RARE Meetings - November 5&6, 2019
Speech by Mrs Agnès BUZYN, Minister of Solidarity and Health at the end of the morning on Tuesday 5 November 2019 The RARE Meetings Tuesday 5...
Figures on rare diseases
Created and coordinated by Inserm, the Orphanet knowledge base (which contains the largest amount of epidemiological data on the diseases of the world)...