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The Orphanet booklet "Living with a rare disease in France - aids and benefits" is online here. This booklet aims at guiding people living with a rare disease...

To relive the intense exchanges of the two days of the RARE Meetings, find online: - the videos of the sessions, - the presentations...

The Rare Diseases Foundation, with the support of the French Society of Digital Health and in collaboration with Yncréa Hauts-de-France and the Chair...

The Rare Diseases Foundation is pleased to invite you to its scientific symposium "Issues and Challenges of Research in Rare Diseases" which will take place in...

The HPN France association launches its 2020 call for projects to support basic and clinical research on hemoglobinuria...

You can now support the Foundation for free just with your clicks! The Rare Diseases Foundation is honored to join the community...

The Rare Diseases Foundation, partner of the European Joint Program for Rare Diseases EJP RD, is pleased to announce the opening of a...

The GIRCI SOHO (Groupement de Coopération Sanitaire Sud-Ouest Outre-Mer Hospitalier) and the Foundation For Rare Diseases have launched a call for projects...

The Rare Diseases Foundation proposes a bi-annual meeting on key topics in the field of rare diseases, with the support of the French government.

We are very proud to present the 25 runners of our solidarity team who will surpass themselves around the Mont Blanc during their UTMB® challenge...

Congratulations to researcher Pascale Bomont who has been awarded a 2019 Consolidator Grants by the European Research Council (or ERC...