NEWS AND EVENTS
Blog
Trail de Haute Provence - Registration closes today!
The Trail de Haute Provence, partner of the Foundation For Rare Diseases closes the registrations for the event tonight at midnight. Only a few more days left...
The Foundation: CIC PRIVATE BANK NORTHWEST's 2020 Laureate
As part of the philanthropic operation "Les Lauréats du Cœur", the employees of the 6 regional CIC Private Banking divisions were invited to...
Webcast: Patient Organizations and Research
The new edition of the Foundation's webcast will take place on October 14, 2020 at 4pm! For this third edition, the Foundation Maladies...
Autumn University of the Rare Diseases Alliance
The Autumn Universities of the Alliance Maladies Rares will take place from September 23 to 26 on the web. They propose to the actors involved in the field of...
Autumn University of the Rare Diseases Alliance
They will take place online from September 24, 2021 and will offer to the actors involved in the associations members of the collective a whole range of...
1st European Call for Proposals in Human and Social Sciences in the field of rare diseases
The next joint transnational call EJPRD 2021 will be the first European PAA in social sciences and humanities to improve the implementation of the...
Annual TETECOU Filière Day online
The annual TETECOU Day will take place on Friday, October 2, as a virtual event. The conferences on the theme of...
Launch of the 2020 TELETHON!
Join us on September 12, from 11:30 a.m. to 12:30 p.m. to follow the launch of the 2020 Telethon live online, Un Téléthon #TropFort!
Filnemus: Postponement of the 24th Neuromuscular Days Congress
In view of the current health conditions, the 24th Neuromuscular Days Congress on October 7 and 8, 2020 has been postponed to a later date,...
New call for projects "GenOmics: high throughput sequencing & rare diseases
The Rare Diseases Foundation is pleased to announce the launch of its call for research projects 'GenOmics: high throughput sequencing &...
The Hauts-de-France region supports our co-design workshop
The Foundation For Rare Diseases is honored to receive support and the INS'pir label from the Hauts-de-France region for its workshop on...
Our 2019 activity report is online!
In this report, you will find a description of the Foundation's main missions and the results obtained, the projects supported in 2019, its...