NEWS AND EVENTS
Blog
The videos and slides of the RARE 21 Congress are online
The videos and slides of each session of the scientific program of this 7th edition of the RARE 21 Conference are online....
Call for proposals Screening
Launch of our call for research projects 'Identification of molecules with therapeutic potential for rare diseases'. The objective of this...
A sailboat in the Foundation's colors
The company Yacht Solutions, through its director Marc Renwick, supports the cause of rare diseases and genetic research with a project...
Research Mobility Fellowships funding opportunity
The EJP RD Research Mobility Fellowships funding opportunity is open until November 28th! The call aims to support PhD students, Postdocs and...
THP Solidaire - Trail of Haute Provence
Back in pictures on this 2021 edition of the Trail de Haute Provence Solidaire, a charity race for the benefit of the Foundation For Rare Diseases proposed...
Call for GenOmics Projects
The Rare Diseases Foundation is pleased to announce the launch of its call for research projects 'GenOmics: high throughput sequencing &...
Closing of the RARE 21 Conference
The members of the Organizing Committee and the Scientific Committee of the Congress would like to express their warmest thanks to the 800 participants, 50 of whom are...
New donation from the Kiwanis Club of the West Var
The Kiwanis Club of the West Var and the association Les Blouses Roses gave a check of 4 000 euros to the benefit of the Foundation for Rare Diseases and...
AFM-Telethon and the Foundation launch a call for projects dedicated to Rare Diseases Health Networks
This Friday, October 15, during the RARE 2021 Congress, Laurence Tiennot-Herment, President of the AFM-Telethon, announced the launch of a...
Two winners / AAP AMMi and FMR
The Foundation For Rare Diseases and the association AMMi have jointly launched a call for projects on the MTFMT gene and Leigh syndrome. Two projects...
ITW #part 1 - Meet the RHU-Cosy lab team
The RHU-COSY is a joint initiative of 11 partners, which includes 2 hospitals (Necker - Enfants Malades AP HP and Hôpital Mère Enfant HCL), 6...
Call for GenOmics Projects
The Rare Diseases Foundation is pleased to announce the launch of its call for research projects 'GenOmics: high throughput sequencing &...