On July 6, 2021, the Foundation will be present at the 5th Meeting on Rare Diseases, which will bring together, via ZOOM, all the players involved in the fight against rare diseases.
Chaired by Philippe Berta, Member of Parliament for the Gard region, President of the "Rare Diseases" study group, and Catherine Deroche, Senator for Maine-et-Loire, President of the Social Affairs Commission, the morning's debates will be structured around several key points:
- Towards the success of the3rd Rare Diseases Plan?
- How to improve patient access to treatment? What European practices can be reproduced in France?
- How to reinforce French leadership in the fight against rare diseases?
- Facilitating access to innovative therapies: how to go further?